Ok, I am officially worried. Had another leak today...2nd in 2 weeks. Starting to have lower back pain, valve and pouch hurt.
Not happy. Wrote to Dr.C's nurse again. Will try to get some tests done here and then try to see him with them when I go...
Please tell me that this is not happening again.
Sharon

Hang in there Sharon! I'm not sure I'm in a position to offer advice but I will keep you in my prayers! Keep us up to date on how you are doing....

Thank you Tiffany,
Dr. C answered me and is asking for a pouchogram and will see me in a month in Toronto...I am terrified.
Sharon

Hang in there Sharon.

Hopefully the pouchogram turns out to be just precautionary and doesn't show any serious issues and then you can enjoy the rest of your trip to "TO".

Best regards

Lew

Thanks Lew,
The pain is starting, kind of like the stoma is trying to push its way out of me...not a good sign but if it is just a muscle pain or hernia I can deal with it...As long as it is not the pouch or valve....
Funny how I am starting to negotiate with God again...'I can live with this if you don't give me that', or 'I will do this if you don't do that to me.'
2 weeks ago I was proud of myself for dancing..now I can barely sit to stand.
This stinks.
Sharon

Sharon....I'm so sorry to hear of your present difficulties. I truly hope it's not a serious problem for you.
My thoughts are with you and I'm pushing positive thoughts your way

Sharon

I empathize with you.

Unfortunately we all have this cross to bear in varying degrees.

I guess I had my really serious issues trying to make it to surgery. (I got lucky).

The worst I have had recently was "butt burn" so bad Last Saturday night I couldn't sit or stand had to get to sleep to deal with it. Pretty minor compared to your issues but still it was a pain in the ***!

I guess in order to get through all this we have to learn to laugh and cry a bit and fight like hell to "keep on gettin on".

I sure hate to say I hope it's muscle pain or a hernia but I guess thats better than the other stuff. Lets hope thats what it is and you'll be dancing again before long.

Take care and keep us informed.

Lew

I tend to agree with you Lew,
I want it to be muscle pain, or even a minor hernia fix...anything that can be fixed with a laporoscopy would be fine with me...it is the dysfunctional/slipped valve senario that scares the day lights out of me....
Will know more on Thurs after the hypaque exam and the ultrasound if needed...It will be the 1 yr anniversary of the last hernia fix too!!!!!!
Dr. C in Toronto is taking it very seriously...will send him the results directly...
Am hoping for a miracle....what are the chances that this could be psycosomatic??? (wouldn't that be lovely!)...
Vavle feels like it wants to push out of my body...
Not having fun .
Sharon