I have had my jpouch for 17 years and I wouldnt have wanted things any different. Ya my tummy grumbles when I dont want it to..and I use the bathroom more frequently than I would like to...but I am healthy and I've never developed cancer..when it was discovered I had FAP my mom found out she had it too. They did a scan and she had colon cancer..so without my diagnosis my mom may not be around to enjoy Sometimes things seem horrible...but it all just makes you a stronger person in the end..keep your chin up..it can only get better..

Great Post!!!!
Welcome to the site
David

Yes, what a wonderful post/share.. and I thank you for it. My son has been having a lot of difficulty with his dad's recent surgery switching from J-pouch to ostomy after 13yrs. Our son is due for his colon to be out within 3 yrs and he never thought of there being an "expiration date" on the J-pouch --and he really wants a J-pouch instead of the ostomy. Also, my husband's experiene with the J-pouch was rough and our son has been anxious over what his experience will be, if he'll have a lot of problems. I love having the chance to share an experience like yours with him... washes him over with some 'calm' and he really, really needs a lot of washing these days. I'm so glad you've had a good experience with your pouch and that you have such a wonderful attitude about having it. I'm sure it helps you in your life and I thank for your sharing so it can help in others, too.
-Meghan

That is wonderful to hear. Learning everything I have been about my rare disorder has inspired me to do more in my life. To help others in a way that truly makes me happy and makes others happy too

When I was diagnosed with epilepsy in 1995 I cried and yelled at Dr.s and G-d and anyone else who would listen...what else? Why me etc...then the following year while on vacation with my Dad in Miami he started acting strange while we were in a mall, then it got worse...I took him out to the car and his symptoms were suddenly out of control...I called for help (1 car in the parking lot behind ours..thank you God!) and when the ambulance arrived I announced that my dad was having a cerebral hemmorage!
They took control and took us to the closest hospital that was specialized in nurology....it saved his life....told me that the fact that I recognised the signs and symptoms made the difference in where they took us...and the outcome...although he ended up hemiplygic...he recoved better than most and walked and talked and took good care of himself thanks to the wonderful efforts of the Mimai nurological center (forgot the name of those lovely people)...
Do I still yell at God anymore? Sometimes, but I thank him for showing me that nothing happens for no reason..and that I have to learn from every bump in my life...
Sharon