please support our sponsors
Register to post messages
chat | guestbook | ibd links | dietary guidelines | faq's | donate | mailing list | support
j-pouch people
The J-Pouch Group    J-Pouch Community    Forums  Hop To Forum Categories  J-Pouch Forums  Hop To Forums  Room to Rave & Rant    What are your side effects?
Go
New
Find
Notify
Tools
Reply
  
What are your side effects?
 Login/Join 
Picture of Eric
posted
Hey gang!

After reading these posts for over a decade, I've learned that our illnesses tend to lead to secondary problems, and I'm curious, what are yours? There are so many other illnesses linked to diseases of the bowel, some have a very obvious links, others, not at all. I find it amazing (and frustrating) just how many problem can be a direct, or indirect result of UC, Crohns, IBD, Diverticulitis, etc. Just for curiosity sake, lets see just how much we have in common. What's your primary GI condition, and what problems have arose from it, it it's treatment?, I'll go first.....

Ulcerative Colitis is my main illness, but have been diagnosed, because of years of prednisone use, with Osteoporosis, Arthritis, and although not a disease, my baldness is a direct result from my treatments (I'm the only bald guy in my family). The not so obvious side effects? I also have high BP, super high tryglecerides, sever chronic anxiety with moderate depression, killer migraines, undiagnosed join and body pain, so bad some days I can barely walk, chronic GI infections, GERD (badically, killer acid reflux, burning my esophagus) and I just can't tolerate so many of the things I use to enjoy, like alcohol, coffee, and anything with fibre.

Most assume we have a tummy ache, and we're just being dramatic, if only it were that simple! I'm sure I'm forgetting something, it's pathetic, because of all these problems I've had surgery (rotator cuff decompression) on both shoulders over the past few years, and take more pills every day then most senior citizens. Our lives many be many things, but simple, they are not, so, what's your problems?, this should be interesting!

Cheers!
Eric Eeker


Toxic megacolon (dead for 2 minutes), total colectomy, 2 pea sized malignant tumors found and removed, chemotherapy initiated and temp ileostomy created- 1990
3 step J pouch (another 4 surgeries in total, one extra for massive infections) and successful completion of chemo in 1992
Diagnosed with GERD 2011
J pouch and rectal removal, creation of K Pouch - June 19, 2012
K pouch failure and removal (just wouldn't work, too many adhesions) and creation of permanent ileostomy - April 4, 2013
November 22, 2013, laparotomy lysis of adhesion, repair enterotomy and 2 serosal tears.
 
Posts: 1435 | Location: Toronto, Ontario, Canada | Registered: March 25, 2001Report This Post
Picture of skn69
posted Hide Post
Sorry sweetie, we are all royally...well, you know...as far as our health goes...this disease does have a pernicious way of attacking us from all sides...I am battling the worst sacroilitis that I have ever had (and I have suffered my whole life from this)...I do not have a happy joint in my body (neck, back, lower back, knee and now feet! plus the wrists...not a happy camper)...my immune system seems to be suffering a lot too...not sure if it is an off-shoot of the diseases or just dumb luck...then there is cancer (not related but heck, had, fought it, got rid of it, it came back and now lymphoma...)plus the whole girly-problems thing that you fortunately don't have to deal with...and the world's largest galbladder to ever be removed (I do things right!)and a platoon of alergies...
is that it? No, there is still the epilepsy and the...oh, forget it...just listing all of this is getting me down...
If I win the lottery I will dedicate my life to a cure for this...we really deserve one.
Keep up the good fight
Sharon


It could be worse...oh, wait..it already has been! then I guess it can only get better from here....
 
Posts: 4541 | Location: Paris, France | Registered: July 29, 2007Report This Post
Picture of Jan Dollar
posted Hide Post
OK, here goes, some of these are related, some not:

UC, enteropathic arthritis with enthesitis, degenerative arthritis, spinal stenosis, pouchitis, cuffitis, rosacea, eczema, tinea corporis, paraganglioma, type 2 diabetes, chronic dry eye, Raynaud's disease, vitamin D deficiency, and obesity

Jan Smiler


Take a deep breath and relax; this too will pass.
 
Posts: 22308 | Location: Fremont, CA, USA | Registered: April 07, 2000Report This Post
Picture of Dixie from Saskatchewan
posted Hide Post
Hi Eric,
I was first diagnosed with Crohns when I was in my early 20's & then the diagnosis was changed to Ulcerative Colitis. I guess I'm one of the lucky ones - I have had no other problems to speak of. - Dixie
 
Posts: 138 | Location: Saskatchewan, Canada | Registered: April 05, 2010Report This Post
Picture of mgmt10
posted Hide Post
So far the only thing I struggle with is chronic anemia/iron deficiency. I only can hope I don't end up with a laundry list of other stuff! Time will tell.


Marianne

DX UC (pancolitis) 2005 when I was 37-Family history of UC
Tried every drug and diet....all failed
Step 1- 6/25/10 (Laparoscopic restorative proctocolectomy with temporary diverting loop ileostomy)
Step 2- 10/8/10 (take down)
Very pleased with my results.
 
Posts: 2529 | Location: NJ | Registered: September 10, 2010Report This Post
Picture of Murray
posted Hide Post
UC and now PSC thats all


UC for 30 years,never, ever had any issue with it.never had a flair up in 30 years.
DX with PSC Nov 2009
DX of High Grade Dysplasia Nov 2011
TC and pouch done June, 2012
pouch hook up done Feb, 2013
 
Posts: 54 | Location: Ont, Canada | Registered: February 22, 2013Report This Post
posted Hide Post
It appears I've gotten off lucky, compared to so many of you.

I was dx'd w/ankylosing spondylitis, and had sacroiliitis for years (no pain for a few years now, though, knock on wood). There were other icky off-and-on flu-like symptoms as well.

The only other problem I struggle with is grumpiness when the fistula acts up Wink
 
Posts: 777 | Location: Ohio | Registered: March 10, 2004Report This Post
Picture of Spooky
posted Hide Post
Most related, some not:

Anemia, anxiety, retinal inflammation, dry eye, difficulty gaining weight. I've also had problems with low potassium and low blood pressure, PVCs (diagnosed as benign occasional arrhythmia), and ovarian cysts. And right now I'm being investigated for a bleeding issue nobody has been able to figure out yet.

I am lucky, however, that I seem to have been spared the joint problems that plague others.

This message has been edited. Last edited by: Spooky,


Dx'd Pancolitis June 14, 2005
Step 1 - Emergency subtotal colectomy/end ileo, July 6, 2005
Step 2 - loop ileo September 26, 2007
Step 3 - Takedown! March 28, 2008

*Very happy poucher!
 
Posts: 1747 | Location: Toronto, Canada | Registered: March 18, 2009Report This Post
Picture of suebear
posted Hide Post
I only have chronic D deficiency.

Sue Big Grin


Wise men talk because they have something to say; fools because they have to say something. ~Plato
 
Posts: 4087 | Location: Santa Barbara, CA | Registered: January 01, 2001Report This Post
Picture of TE Marie
posted Hide Post
Prior to UC diagnosis but I'm sure I had it then as well:

Low thyroid, out of control since j-pouch surgeries end of 2010

Hysterectomy
UC diagnosis
Fibromyalgia, including pain and fatigue
GERD
C-diff infections
Sinus surgery
Sleep Apnea
Restless Legs Syndrome
Low Vitamin D
Neuropathy in both feet
Migraine Headaches
Arthritis in Neck, Lower back & knees
Surgeries & J-Pouch
Chronic Cuffitis
IPS
C-diff infections
UTI infections
Dry Eyes
Dry Mouth


You may not be able to adjust the wind, but you can adjust your sails.........
 
Posts: 4246 | Location: Iowa | Registered: January 22, 2011Report This Post
  Powered by Social Strata  
 

The J-Pouch Group    J-Pouch Community    Forums  Hop To Forum Categories  J-Pouch Forums  Hop To Forums  Room to Rave & Rant    What are your side effects?

copyright the j-pouch group 2006-2007