I finally did the pill cam last week and I finally got in touch with them and the diagnosis is (insert drum roll)...Within normal limits...I'm normal...I may have terrible pain when I eat and I may have felt the stupid pill while it was in my small intestine but apparently, that's normal... I'm so pissed. I thought for sure when I felt it hurt for awhile that they would see what the h.e.double toothpicks was going on..I know you all know how I feel. It's not like you WANT something wrong with you, but I know my body and I know things are getting stuck. So I've decided, I'm done. I'm done with tests, etc. I'm disgusted and won't get another thing done unless I'm at death's door. End of story. All that cleaning out for the pill cam has started up some pouchitis. Yippee. And I did it all for nothing I've had my pouch for almost 11 years and I've had so many problems. I'm certain I have a belly full of adhesions and they won't go near me unless it's an emergency.. Yay for me. I'm 37 and I live like an old lady. I'm tired of it and tired of what ulcerative colitis has stolen from me. I'm tired of the uncaring doctors, of family members that just don't understand, of friends that call me to complain about how "bad" their lives are when I wish I was as lucky as them. I know things could be worse but come on people, I've had this for over half my life and I'm just tired.... How am I supposed to remain positive with all this? I never have a "good" feeling day anymore.. Not one. I'm literally pooping my life away....

I am so sorry Margie,
I know that you were not hoping for something to be 'wrong' but just something to explain why you are feeling so rotten...we don't wish to be ill...we want to fell good and healthy and happy...they don't get that...the 'they' think that we like feeling this lousy...I just feel so bad for you, your hopes for a solution or at least a diagnosis that would help to explain your pain and discomfort...this is so ****ty...and unfair. I have learned to hang up on the people who complain bad bikini wax...let them think that I am a bi-ch, doesn't bother me in the least...but please, don't give up...there are good and caring doctors out there, they are just difficult to find but worth the search once you find them...change hospitals, doctors of services...but don't put yourself and your life in danger...I know the feeling like your life is being flushed down the toilet daily...
All I can do is send a cyber hug and a friendly should.
Sharon

Thank you Sharon. I needed that cyber hug I think if they felt one day like the way I do, they would understand. The other issue you and I talked about before has improved some. I make sure that I go to the bathroom right before...It's helped some. As for the friends issue, I know they mean well and need their outlet too, but its almost a joke what they feel is a bad day...As for the doctors, I just am beyond numb. I've had good doctors before so I know they're out there. Thanks for responding..You always make me feel better

Sorry to hear you didn't find any solutions. I feel the same way. I did the barium small bowel test and was told everything looks great. I asked the radiologist what was causing the pain then and he said probably scar tissue. So all I know is it's not strangling my remaining intestines.

There appears to be no test that clearly shows scar tissue and adhesions. If anyone knows of one please let us know.

We aren't going to quit now, we have not gone through all of this to give up the fight. It's been a big long battle with our bodies attacking us.