Hello all!

I've been on this board for some time and I have to say that this site has really helped me through some tough times.

As a counselor, I have become more and more interested in how digestive illness impacts children and teens. I'm working on a website exclusively for parents, children and teens that will be all about digestive illness.

First off, I don't want my website to take any viewers from j-pouch.org! In fact, I'd love help promote each other at some point if possible- but that's a whole other story for a whole other day

I was wondering if you parents out there would be interested in a blog-type site for children with digestive illness. It would have updated news on treatments, coloring pages, ways to connect with your kids and help them through this process, etc.

What do you all think? What are some very important things that you would look for in such a site? I know I will not be doing a message board, as this site already has a really wonderful one, but I'd love to fill any needs that families might have.

Thanks everyone!

I have a 5 year old daughter with FAP. In a few years she will have to start having scopes. It would be great to have a site geared at children with digestive issues. Something on their level would be a great resource!

God bless
Lisa

As a mother of a child who has had IBD since probably before age 1 I think anything geared towards kids and their parents is great. There is however already a wonderful message board for parents of kids with IBD and digestive disorders as well as CCFA's site for teens/kids.
That doesnt mean there can't be another one or one with more info/different format.

Hi - it was the Internet and a Colitis chat group that kept my sanity when my daughter was diagnosed with the 2nd worse case of UC by a GI at a Baltimore hospital. This was when chat was by the minute - no monthly rates - NOW - I believe in support however I do not go on FACEBOOK or TWITTER
so anything else I can do to help let me know

They have a web site for parents of kids with IBD of varying degrees. It might also have one for the kids too. I used it quite a bit 10 years ago when my daughter was 5.
http://www.dragonpack.com/ibds...t/parents/index.html

If you are looking for information about young people with ostomies or intestinal or urinary diversions, you should also check out YODAA The Young Ostomate & Diversion Alliance of America at www.ostomy.org or the UOAA Teen Network.
They are an amazing group, and in addition to providing peer, parental and educational information and support, they also run a Youth Rally program and camp for those who want to meet face to face and share expierences.