I have posted this question before, but every time I see my GI he still gives me the option for the K-Pouch. I am just concerned with that failing like my J-Pouch has, right now I have a temp ostomy and we are waiting for new meds to come out before we try and re-connect. At some points right now I rather have the end-ostomy because I still have a lot of problems even with the temp. I just do not want to risk the chance of short bowel syndrome.

can't blame your trepidation.i personally would not want to chance a k pouch with crohns.
after seeing what my son has been through if my j pouch failed i would not want a k pouch even without crohn's.
that's 1 person's opinion.
and your GI is not a surgeon.

I know what you mean Holly. You have been very helpful in the past with questions. Lately I have had a lot of problems with my kidneys so dealing with the pouches have been put on the back burner. I hope Chris was feeling well enough to go out for his first ****tail on his 21. Best wishes and Happy Holidays.

I got stars and all I was trying to do was describe an alcoholic beverage.

Ha ha!

How funny!
Chris had a great party for his 21 and I saw pictures and a video he made that was a riot. I learned what a body shot was too!
Happy Holidays to all and to all a good night. I will be 55 in 1 hour!

Happy Birthday! I am feeling like garbage tonight. So I took my meds and I am watching The Godfather.

Merry last hour of Christmas to you and happy birthday to Holly.

I have Crohn's and a k-pouch. I wasn't dx'd with Crohn's until a couple of days after my k-pouch surgery when the pathology report came in.

Dr. Fazio, one of those who "makes" k-pouches, said that the odds of a successful k-pouch for someone with Crohn's is 5 years. I'm not expressing that well, but I mean that at the 5 year mark, 50% have had to have the pouch removed while 50% are doing well. Perhaps because he creates k-pouches so well, he thinks that there is a high degree of quality of life satisfaction with a k-pouch, and I think he is currently doing some research to quantify that fact.

I'm much older than you (65 years old) and female. I've had my k-pouch 4 1/2 years and think my quality of life is good with it. I was diagnosed with inflammatory bowel disease 35 years ago.

Lots of factors go into choosing a k-pouch, but maybe the most important is that 5 year 50% fact. I assume you are young and you might have a good k-pouch for decades or forever; but it might not work out for you. I hope more folks with Crohn's respond to this thread so you get a wider range of opinion.

Enjoy watching The Godfather, and have a happy and healthy new year.

I have a BCIR and MAYBE Crohns. I say maybe b/c 22 yrs ago, they said I had Crohns, but when I had the BCIR in 1990, no sign od Crohns was found. But I have had all kinds of problems with pouchitis. Everytime, they have put me in the hospital for bowel rest, they have NOT found it and I actually had a valve repair in 2000 and no Crohns was found then as well. But still struggling and it is worse than ever now.
Also have gotten lactose intolerant real bad, which stinks as I love ice cream and yougurt. TOUGH ADJUSTMENT. But I am REALLY struggling now if I should just give up or try Remicade. How has Remicade helped others? Also, I am scared and depressed that if I give up and go back to an ileostomy, I will be close to short bowel and it will be even worse than this. OF course, my 8-10 trips to the BR would be faster.
But still after trying so hard ALL this time with the BCIR, it seems crazy to give up with possible new meds coming out.
Also, does anyone have bad chronic back and leg pain? They have done MRIs, Cat Scans,,,, etc. and about all they can say is it must be related to Crohns. To "survive", I take a ton of strong pain meds. If I didn't take them, I would probably not survive as the pain is so bad. Today, no one understands and it is hard to keep a Dr. willing to even give me pain medicine.
Anyone with remote experiences? Advice? THANKS SO MUCH!

For Xander:
I can't help with Crohns ( I had UC) or treatment, but there are other points in your post I can relate to.
I had a Kock done in 1979 and all was well for a long time. In 2002 I started getting abdominal and back pain. No one was sure why. Long story short;2003 I went in for a valve repair and came out with an end ileo.Although I didn't like having the end ileo, I DID notice I no longer had the back pain or abdominal pain. Turns out the pouch was significantly distended and most likely causing both pains. So this may be something for you to check out.
So, now in 2003 I had the unsuccessful valve repair and have an end ileo. In 2005 I consulted with Dr. Fazio about a second Kock and of course major concern was SBS. However, in the OP report (from end ileo) the length of remaining bowel was documented and after Dr. Fazio did a scope determined I was okay for a second Kock. I am doing very well.

You don't mention who you are consulting with (which is fine) but maybe a second opinion would be worth your while.

I had a K pouch done in Jan. 94 due to UC. I had pouchitis off and on from 93 till 96 when I was diagonosed with mild Crohns. I was put on Pentasa for the Crohns and Cipro for the pouchitis. I now use Colazal instead of Pentasa and am still on the Cipro.
I have had no pouchitis or any problems with the Crohns since that time. My GI is one of the best in the world from Johns Hopkins. This treatment may seem radical, but it has worked for me.
Obviously you should talk to your GI, but I would rather do this than face surgery.
I hope this information helps.
Larry