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pouch/bladder connection
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Posted
This has beome a sleeping issue for me. It has happened in the past. I am getting literaly tired of it. Has anyone had this issue?

I empty the pouch before I go to bed. Three ours later there is pressure on my bladder; not the urgency kind that you have to pee,just an annoying pressure. So I get up to empty my bladder. One hour later, the same thing. This can happen again. So thenI empty the pouch and the bladder pressure no longer exists.

Obviously the pouch is resting on the bladder and no matter what position I sleep in I am uncomfortable.

You might say to me: eat an early dinner orif you late (which I do sometimes 7pm) eat lite. I eat very lite; small portions; nothing heavy.Why don't I just empty the pouch when this first starts at night and to H*** with the bladder nonsense?

But again, my question is: does anyone experience this?
Leslie


Kock 1979; end ileo 2003; Kock 2006; Tpouch 2010
 
Posts: 646 | Location: Florida | Registered: October 31, 2004Report This Post
Picture of JaniceM
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hi...while it was an issue from the get go, this got progressively worse for me during perimenopause and escalated post menopause. What has helped was having my uterus removed. It's allowing the bladder to be able to expand better and not feel full.

Also, I had frequent urge feeling because loss of estrogen. I had a severe case (my adrenals are weakened and didn't take over estrogen production after ovaries menopaused) and had vag atrophy causing external and internal inflammation, bladder inflammation, groin inflammation, etc.

I'm not sure how young you are but I did have a rough time of the menopause process.


Proctocolectomy 1979; Kock Pouch 1980; valve repairs 1981/83/85; Cholecystectomy (gallbladder) 1985
 
Posts: 826 | Location: Orange County, CA | Registered: May 13, 2008Report This Post
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Les,
My pouch seems to be intimately connected to my bladder since my last series of surgeries (since they moved my pouch Low down)...so I can't empty the pouch unless the bladder is emptied first (can't get my tube in with a full bladder) and I can't empty my bladder with a full pouch Eeker...so I need to pee a bit, slip the tube in, pee more, empty a bit, pee more etc...at night I don't even try to pee without emptying or I am woken up 3xs in the night...it is just reflex now to do them both and get it over with...doesn't matter how little I eat, I still have gas that takes up space and the pouch will push against the bladder so ....it's ping-pong...
In the end I think that I have peeed without also intubating about 6xs in the past 4yrs.
It just is.
Sharon


It could be worse...oh, wait..it already has been! then I guess it can only get better from here....
 
Posts: 2722 | Location: Paris, France | Registered: July 29, 2007Report This Post
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