Hello All,

I am currently investigating my options because of the necessity to remove my colon in the very near future due to UC. I have questions for all K-pouchers, J-pouchers, BCIR patients.

1) Please identify which applies to you (K,J, BCIR...?)

2) Did you have rectal removal (and did it include or not include the sphincter muscle)?

3) What was your outcome? Are you satisfied with the outcome.

I am likely to have entire rectal area removed and am curious mostly about the J-pouch's success with or without the rectum. I understand there is the potential of quality of life to be no better and that my cancer risk only would be eliminated (I have dysplasia). I have talked to many who have the J-pouch, but no one with it who is rectal-less (is that a word?)

Please help me attain the power of knowledge!

Thanks,
Jeff

I have a j-pouch, and I think that nearly all of us do not have a rectum. What we do have, in many cases, is a 1-2 cm cuff of rectal tissue that is left. If you had dysplasia low in the rectum, the mucosa would likely be stripped.

We all retain our sphincters, as these are necessary for j-pouch function. I had some complications, but I am quite satisfied with my outcome. My primary reservation regarding a continent ileostomy would be the general lack of knowledge and expertise in its management, and the possibility to travel long distances for after care. But, being in Santa Rosa, you are close to San Francisco, where there are a few docs who perform continent ileostomies.

Jan

I have a Kock.
No rectum.

Great outcome (two times!)
As Jan said, when making the decision, keep in mind the distance needed to travel for a doctor who is well qualified to do a Kock. Will this be a problem if you need follow care in an emergency situation.
There are many more surgeon who do a Jpouch.

Also remember that many people who come to the boards, especially initially, are people looking for help. There are many more out and about having a great life with their pouches

I have a BCIR. They removed my rectum and sphincter muscle. I am very satisfied with my outcome. I have never had revision type surgery and I am in double digits with my pouch. This surgery was after I converted from a j-pouch.