Hi - we have several kock pouchers in So Ca and a few of us got together over a year ago to meet and visit and share tips.

I'll be planning another one soon so if you're are interested in possibly attending, please send me your email information and I'll add you to the invite.

Thanks!

Hi Janice,

I would love to get together with others and share tips. I am almost 7 months out from my surgery and loving it! Should have done it years ago if only I had known about it. I had a wonderful trip in Australia thanks to your tips. The only problem was my luggage getting lost for three days and afraid I would run out of supplies, but thankfully that didn't happen. My e-mail is: nanaknits@yahoo.com. Would love to hear from you. Judith

Hi Judith, so happy you had a wonderful trip. I just added you to the email I send out to our little growing group. I hope more folks that live in So CA are interested in coming. Its so fun to know others with a continent ostomy! One member has a kpouch for urostomy - very rare!

JaniceM;

Just a thought on your get together that you are planning. Get in touch with Tillie Huber at Century City Hospital in LA, she is the co-ordinator of the BCIR program that is run out of that hospital. She may be able to give uou some names of people willing to attend. Tell her I sent you, Ray Suskie (QLA, Secretary). Maybe you can plan to attend our event scheduled at the end of September in Florida. Go to QLA.OSTOMY.ORG for info on our organization and Symposiums.

Ray