Ok, I admit it...I had hope...stupid me!
Thursday night I couldn't intubate...tried all night and tried hard not to let the panic in..took a 1/4 of a valium every 8 hours and prayed for the best...At 9 am I managed to get a 16 folley in and took 3 hours to irrigate and empty but it still meant relief! and hope.
By noon I still couldn't put in a normal tube inspite of the folley and the wire so off I went to the hospital where a wonderful IT nurse took charge in seconds. Still couldn't do it so they called the residen...he got a 20 or 22 folley in and I am living with it since...of course the x-ray showed nothing because it is all rubber. The good news was that they finally gave me an apt with the surgeon for yesterday ....3 hour wait but what the heck, at least I was going to get some answers or some tests ordered up! Not a one
He decided without even takinga peek or a test or a scope that I was 'hopeless' and that there was really nothing to be done..;without even establishing a true diagnosis!
He believes that I have an 'indentation ' in the side of the valve from going to wrong way so often( I never went the wrong way before! I only happened 3 times!) that it has caused a 'dead end' and that the only real way to fix is is to take the whole thing apart and he is not willing for the moment to think about that...come back in a month, Thank you Mame! Pay up! No need to look inside to find out the real reason if at all possible.
Thank G-D Dr. C is around to keep me sane!
He is willing to read any tests that I can get done and envision other options...first he wants to see what is really up so tomorrow I go for a contrast florascope...lets see what they find then...
In the meantime everyone says to keep the foley in ( like I would even dream of removing it! ) although I am 'intubating' beside it with the medena and only using it as a guide the way I did with the wire...(it is really too small to let much through and I don't know if I can live on liquids again!)
So...that's all folks...it is not over until it is over...
I'll keep the faith and hope for the best...not ready to give up yet..;
Sharon

Hey
I sent you an e mail but it came back.
I am sorry the saga continues.
I am still here with you.

oh my goodness. Sharon you are really showing a lot of patience, I can only imagine how frustrating this must be. Thank goodness Dr C is willing to help you out with this however he can. Hopefully things go well with the fluoroscope.
Thinking of you! Take care!

Thanks Guys, for the support...nice to know that someone is out there...I went for the floroscope today, the radiologist let me litterally guide him as to what to do and what to look for...really nice, the whole team was. It took 2 hours from start to finish. So nice to be somewhere where I have health insurance!
Well, I don't know much more than I did before, I saw the valve with the folley 22 in place, looked great! Saw a perfect pouch and then we slowly slipped out the folley and injected the valve..nothing glaringly obvious that jumps out and screams "fix me here"!
I have no idea what Dr. C is going to find, I emailed out the results from the CD and will send out a hard copy as well. The French Surgeon who didn't even want to look got sent the original pictures, maybe he will bother to look and find something.
I don't really like these people who tell me to live with it, it's not so bad, what's your problem...etc... Basically, don't bother me!
It isn't their life, is it?
So, now I wait and see who finds what...in the meantime I am looking at different types of folleys and caths to keep in place that hurt less and cause less damage. I am as always open for suggestions.
I am wearing a very soft folley but don't use it to empty, only to hold the valve strait!
So, wish me lots of patience and lots of optimism.
Sharon

Hello there,
Well, I am glad the team was pleasant. Better than the french surgeon, who remains nameless for a reason!LOL
I do hope Dr Cohen is able to make a determination from what you sent.
As for Dr. Nameless(heartless too)one can only hope he looks at it.
I know determination. You have lots.
I still have not received the catheters dmarie told us about. As soon as I get them I will put your goody bag together.
hugs to you and tell Gabby we all feel for him too!

This message has been edited. Last edited by: "FLGF",

Thanks Holly, the poor guy is really trying hard here. He's got 2 sisters hospitalized, both severe, and me sick as well, plus a really bad cold/broncitis..he is just having loads of fun!
I would love to give him some good news for once...it is fixable or doable or something positive other than let's just give up!
Am seriously consiedering going back home for good. Don't want to make him suffer and I can't seem to see an end in sight. I've lost my work and my office and now still no diagnosis or prognosis...I am really trying to be positive but there are just some days I want to punch a bag!
Thanks for exisiting
Sharon