Yes, I wear a medical alert bracelet 24/7. Shortly after my k-pouch surgery I felt I deserved a treat so I had one made in gold. It was expensive but since I was going to wear it constantly I wanted something handsome. And since I got it in 2003, I guess it was a bargain compared to current gold prices. It looks like a heavy ID bracelet with my initials and a small red insignia (can't spell the word, but like a snake thing with sort of wings at the top).
Mine says, in three lines of engraving on the inside: Coumadin Continent Ileostomy Crohn's Disease
(I take Coumadin for thrombophelia and that word may be the most important piece of info if I were in an accident because I bleed more than others do)
If I were doing it again, I might add the Cleveland Clinic phone number or my local gastroenterologist who has my records, but now there isn't any more room after the other stuff was engraved.
Posts: 134 | Location: virginia | Registered: June 06, 2001
Good question! I was actually recently thinking I should get one myself. I'm going on vacation to Texas in May and a little terrified but the idea of going to a hospital where they've never even heard of a k-pouch. I still have the phone number for the colorectal surgeon on call at the CC on my discharge papers, I was thinking of having that put on. Ideas?
Chris has one on his neck, dog tags, 2 actually-the old one with dr fazio and ccf info and the new one with dr shore's info says insert 30fr, continent ostomy, no IV in left hand it was $65 and is stainless, i bought a chain but it came with a thin silver one
i posted the company info in general discussion on the old thread i found
This message has been edited. Last edited by: "Holly",
Posts: 464 | Location: FL | Registered: November 14, 2004
I just got a MedicAlert one that says "continent ileostomy, uses #30 French catheter." I thought it might be a good idea to have the catheter info on there, too. My MedicAlert account has Dr. Launer's name, phone and fax numbers in my physician contacts list. I just got it, so I haven't had anyone try to read it yet.
Posts: 8 | Location: Oklahoma | Registered: January 28, 2007
I wear one also. It says "continent reservoir, drain with soft 30 F catheter". It also has my surgeon, Dr. Rehnke's phone number on it. I am registered with medic alert so they have a list of my allergies and other medical history also.
Posts: 275 | Location: Retired | Registered: April 07, 2000
If you are in the Dallas area in May I can give you the name of a good surgeon at Baylor in Dallas who I am sure could help you if you got into trouble. I can give you his medical assistants name and number and you can call prior to your trip just in case. It would give you peace of mind.
no pun.
