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Hi...do any of you kpouchers been diagnosed with an enlarge stomach retaining fluid - Gastroparesis?
I just found out that I have had this and would like to know if you have done anything to help with it. Thanks! Proctocolectomy 1979; Kock Pouch 1980; valve repairs 1980/83/85; Cholecystectomy (gallbladder) 1987 |
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Hi Sharon
I was on a web site last night calling HealingWell.com Fibromyalia. I was amazed how many of the gas also had gastroparesis. I wonder if they are related. You get some info there. Jeanne PS I found a colorectal surgeon here in EL Dorado County to see me day after Xmas for scope and possible adhesion takedown. No antibiotics are working soooo it's got to be obtructing from adhesions. |
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OOOPS I meant Janice
Boy have I got the fog today. SORRY |
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Hi Jeannie...thanks for the info! My RLS has been so bad lately as well...so maybe time to follow fibromyalgia protocol to see if any relief. Wonder if fibro is related to UC?
I am so glad you found a surgeon in your area - I know how much pain you've been in. It's important they rule out everything. I don't think I have pouchitis either. I think it's adhesions,too, but will see surgeon next week as well. And, then have my anal track sewn up to a barbie butt and stop this bleeding/mucous and that will be that! Proctocolectomy 1979; Kock Pouch 1980; valve repairs 1980/83/85; Cholecystectomy (gallbladder) 1987 |
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