I would like to share a recent experience. I had the opportunity to assist a young man who believed he had a K pouch. It turned out it was a T Pouch.
Dr. Gregg Shore from St. Petersburg, FL went to Michigan to observe the surgery this young man required to repair the pouch and was quite impressed with the T pouch.
He will now offer this option to ostomy and other patients in need of repairs due to valve slippage. The t pouch does not have a valve that will slip.
It is always nice to know there are other options and that there are improvements being implemented.
http://www.springerlink.com/content/tepqqa7hgnw5ragd/

Youppi! There is hope!
Kind of calms my fears for the future of the k pouch
Sharon
P.S thanks H!

Here's an abstract
Abstract:

PURPOSE: After proctocolectomy for ulcerative colitis or familial adenomatous polyposis, creation of a continent ileostomy is one of the surgical options. Although most patients will be offered a pull-through procedure, the continent ileostomy is a valuable alternative in patients who are either not candidates for or have failed an ileal pouch-anal anastomosis or who--for other reasons--prefer a permanent ileostomy. The traditional continent reservoirs (Kock or Barnett pouch) with an intussuscepted bowel segment as valve mechanism have an unsatisfactorily high incidence of dysfunction and frequent reoperations. The objective of this study was to adapt the T-pouch valve concept, previously used for urinary reservoirs, for a continent stool reservoir and to construct a valve mechanism that omits intussusception of the bowel and maintains the blood supply to the valve segment. METHODS: The technique for the critical valve construction is described in detail. It consists of isolating the terminal segment of the small bowel with its blood supply. The valve mechanism is created by embedding this segment in a serosa-lined tunnel of two apposed limbs of bowel that will form the pouch reservoir. RESULTS: Preliminary results in six patients indicate complete continence of the pouch. CONCLUSION: Although long-term results are not yet available, the new T-pouch concept is suitable as a continent stool reservoir and promises a significant improvement as compared with the traditional Kock pouch.

This abstract is from 2004 that still floats around the internet. Unfortunately, there has been no further studies/information about success stories posted online that I could find.

It would be great if those with a Tpouch become members so they can share their experiences with us 1st hand. And, we can contact them directly for more information.

I'm all for a new continent ostomy procedures, and curious to learn long term results from Dr Shore and his patients.

I can only think of one member who had a t-pouch (this was in California) by her surgeon who thought it was going to be the next greatest thing. Unfortunately, it failed and she wound up getting a j-pouch. I believe that also failed her and she wound up with an ileostomy.

You may want to try PMing Sierra Barb:

http://j-pouch.org/eve/persona...profile&u=1081080921

Jan

I have had a k pouch for 32 years and recently had valve changed to the t valve because of slippage.It was preformed by Dr. Greg Shore in Florida.It seemes to be a good way to go since the valve can't slip. But I still have some leekage problem's and Dr SHORE is moving from Florida to Atlanta area or Tennessee.I have not been able to find out where as of yet. If anyone knows please let me know.

Sorry to hear....the office won't tell you where he's gone? That's alarming.

also, has he been training anyone I wonder? interesting.....

I had a Kpouch converted to a Tpouch by Dr. Shore June 2010. I will see if I can 'track' him down. Maybe he hasn't settled in somewhere yet.

thanks

I do not know of anyone he is training,I do wish more Dr would train for this type of sergury. Most surgen's do not talk to their patient's about this option

This bother's me to.I don't know why he does not want us to know what is going on.It's like he is leaving us with no options and no one to consult with our problems

Not many surgeons perform a T pouch. In CA I can think of only one. I didn't realize that in the US there was a second surgeon doing these procedures?

Sue

you called the office and/or emailed Fran and was not able to get any answers?

they were doing it a Cleveland clinic not sure if they still doand I think there are a couple Dr.around north east.DR.Shore's case manager told of two but I do not remember their names