Ok, I am not ringing an alarm bell, yet...but this is the third or fouth time that I wake up and have to search for the direction of the valve to get the tube in...it takes about a minute or two...I hold my breath and pray it is all a big joke and will resolve itself....and then I get the tube in..never in the same direction twice....usually in the morning when I get up after having slept on my side or when there is lots of backup..But it is not normal to have it happening again..is the pouch/valve shifiting?
I am staying calm but it is happening more often and it hurts when I push it in the wrong direction....also can happen in the daytime after a meal...
I refuse for this to be the begining of another problem..not sure if I could survive another one!
Sharon

I can't help you with your question, Sharon. But I hope and pray that it is not another problem for you!!

Good luck!!

Sharon, glad the alarms aren't sounding yet.
I have had a partially slipped valve for the past 16 months. I've noticed that intubating can be tricky.
One trick that sometimes works for me is to take a nice breath, and as I exhale, slide the catheter in. I've been using lots of lube and the cath doesn't always go in the same way for me as well.
When I intubate, I sit straight up. No more slouching. Seems to help.
You may be doing this already, but this is what I can offer.

In my opinion, Dr. Joel Bauer, M.D, associated with Mt. Sinai Hospital in NYC is one of, if not the BEST surgeons when it comes to either Koch Pouch/K-Pouch surgery or J-Pouch surgery. He has a great deal of experience and surgical knowledge and expertise in terms of abdominal surgery of all types.In my experience, he is excellent in regard to Koch Pouch surgery. I would highly recommend Dr.Bauer , whether you are getting a new 'pouch' procedure or need any type of revision surgery related to an existing Koch Pouch or J-Pouch. Dr. Bauer is very experienced in creating a strong, continent 'valve', which is so important for the Koch Pouch procedure. He has given me my life back in this regard. IMO, the he is BEST. As mentioned , his years of surgical experience and his desire to help patients with complex major surgical issues related to K-Pouches, the J-Pouch and many other aspects of abdominal surgery make him an excellent choice for anyone requiring this type of surgical procedure or revision surgery.

I've got a great k pouch surgeon in Toronto..Dr. Cohen at Mt Sinai..but I live in Paris so I don't exactly get to see him every time I have a problem...I've got a French dr who knows what is going on a fixes the hernia but doesn't touch the pouch...I wrote to dr C today to let him know what is going on and that I will be in Toronto early next year for a visit and a check up if possible...for the moment it is an on/off problem...not constant just occasional..hopefully it is the muscle healing and sliding into place..just had a huge post dinner buldge over the pouch and then a super cramp on top of it..herina repair pain? As long as the hernia holds I am happy...and as long as the valve holds too!
Sharon