Where can I get a list of doc. who do this surgery? I live in northern NV.

Dr. Dana Launer, San Diego. Dr. Victor Fazio, the Cleveland Clinic.

Dr. Jeffrey Milsom at New York Presbyterian Hospital in NYC also does k-pouches.

janna

Those are so far away, isn't there anyone else? maybe salt lake utah?

Bill, you need to go to the best in the country for this. There are only a few surgeons who can do the complicated valve surgery. Most local cole-rectal surgeons don't have enough experience. Trust me, you won't be sorry with either Dr. Launer or Dr. Fazio.

I suggest you ask your surgeon or GI. They probably would know if there was someone local with experience. I know that at least for a while, we had a surgeon at the Fremont Kaiser who worked at Cleveland at one time. There just doesn't seem to be a database out there for this. So if you want someone more local, you need to do a local search. But, do make sure that he has the training and skills necessary.

Jan

If you can make it to NYC I would suggest Dr. Gorfine Mt Sinai Hospital

Gorfine is a fine doctor, but Kock pouches are not his specialty. Dr. Joel Bauer would be a better choice for NYC. Dr. Fazio in Cleveland and Dr. Launer in San Diego. And then you have the BCIR folks in St. Pete. FL.

Whats the diff. between BCIR and kouch pouch?

The BCIR has what they call a 'living collar' that wraps around the base of the valve inside the pouch. It is made out of a few inches of the small intestine. It communicates with the pouch and as it fills will stool it gently squeezes the valve and is supposed to make it less likely to leak. The Kock pouch is basically the same as the BCIR but does not have the 'living collar'.

The surgeons at my local Kaiser were doing what they called a modified BCIR. I have no clue what that means, but it probably means that they take the best of both surgeries and utilize them to the best advantage.

Jan

Dr. Ann Kalhorn and her partners in Phoenix have limited their practice to colon and rectal surgery. I don't know if Phoenix is closer than San Diego, but here's another name for your research.