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Picture of JaniceM
posted
PLEASE LET ME KNOW IF ANYONE IS RETIRED/MISSING!

The older topic was accidently removed by Host Bill. I started a new topic to make finding surgeons a bit easier in the forum. We're asking Host Bill to keep this new master list at the top permenantly.

UPDATED: Here it is in no particular order, US first followed by Outside US.

INSURANCE COMPANIES PLEASE NOTE: THIS IS A LOOSELY COMPILED LIST AND IS IN NO MEANS LEGAL DOCUMENTATION AND HAS BEEN COMPILED INFORMALLY TO USE AS A TOOL FOR MEMBERS ONLY IN FINDING A CONTINENT OSTOMY SURGEON. IT DOES NOT IMPLY THAT THEY STILL PERFORM THESE AND/OR DO ALL TYPES OF CONTINENT OSTOMIES

Continent Ostomy Surgeons
U.S.

Dr.Gregg Shore- (NO LONGER AT THIS PRACTICE)
1201 5th Ave.N.,St. Petersburg , FL 33705
888-825- 1495
http://www.intestinalcontinence.com

Matthew Vrees, MD
Rhode Island Colorectal Clinic, 334 East Ave, Pawtucket, RI
401-725-4888
http://www.ricolorectalclinic.com/physicians.htm

Dr.Jeffrey Milsom
1315 York Ave.,NY,NY
212-746-5597
http://www.cornellphysicians.com/jwmilsom/

Dr.Joel Bauer, Dr.Stephen Gorfine and Dr. David Bub
25 E. 69th St. NY,NY 10021
212-517-8600
http://www.colonsurgeryinfo.com/

Dr. Launer
Dr Michael Jonathan Worsey (trained by Dr. Launer)
jworsey@advancedsurgical-sd.com
Dr.Gail Salganic (trained by Dr. Launer)
gsalganick@advancedsurgical-sd.com
Scripps Hospital
Advanced Surgical Associates of San Diego
9850 Genesee Ave.Ste. 201 LaJolla,CA 92037
858-558-2272
http://www.advancedsurgical-sd...tent&task=view&id=23
http://www.advancedsurgical-sd...tent&task=view&id=25

Dr. Donald Schiller
9808 Venice Blvd, Ste 603, Culver City Ca 90232
310-204-4565
http://www.ileostomy-surgery.com

Dr. Fazio, Dr. Feza Remzi, Dr. David Dietz and Dr. Kiran
Cleveland Clinic, 9500 Euclid Avenue,Cleveland, OH 44195
800 -223-2273
http://www.ccf.org
http://my.clevelandclinic.org/...ry/3/Staff_2393.aspx
http://my.clevelandclinic.org/...ry/5/Staff_4088.aspx

Dr. Robert Wexner is a surgeon at the Cleveland Clinic in Weston, Fl. He mentioned to a member he does a few KP's per year. A possible option.

Dr. Alex Ky-Miyasaka
Mt. Sinai, 5 E. 98th St #11,NY,NY 10029
212-241-3547
http://www.mountsinai.org/Find...842&officeDrawer=pat

Dr.David Sung
1260 15th St.,Santa Monica, CA
310-395-6123

Dr. Ernest Rehnke
The Palms of Pasadena Campus BCIR Unit, Petersburg , FL 33705
800-336-0789
http://www.bcir.com

Dr Paul Williamson
110 W. Underwood St.,Orlando, FL 32806
407-422-3790
http://www.crcorlando.com

Dr. Rolando Rolandelli
95 Madison Ave., Ste 304C, Morristown ,NJ 07960
973-971-4105 or 973-971-7200
http://www.dr-rolandelli.com/m...team/rolandelli.html

Dr.Robert Jacobson
3409 Worth Street, #500 Dallas, TX 75246
(214) 824-1730‎
http://www.baylorhealth.com/Ph...sician.aspx?pid=2146

Dr.Sandy Fogel
213 McClanahan St SW, #404, Roanoke,VA 24014
540-342-6346
http://www.carilionclinic.org/...ysician&phyID=135028

Dr. David Beck
1514 Jefferson Hwy.,New Orleans, LA
800-348-7875(outside LA)1-800-874-8984
http://www.ochsner.org

Dr. Susan Galandiuk(learned from Dr Fazio)
University of Louisville Colon & Rectal Surgery
550 S. Jackson Street, Louisville, KY 40202
502-852-4568
susan.galandiuk@louisville.edu
http://www.louisvillesurgery.c...ctors/galandiuk.html

Dr. Guy R. Orangio
Atlanta, GA
770-995-9528
http://www.gcrsa.com

Dr Kaiser (Kock pouch and Tpouch)
USC Norris Cancer Center and Hospital
1441 Eastlake Avenue
Suite 7418
Los Angeles, CA 90033
akaiser@usc.edu
http://www.usc.edu/schools/med....php?PersonIs_ID=540

OUTSIDE US:

Dr. Zane Cohen, Dr. Robin McLeod
Toronto, Canada
416-586-8346
http://www.mountsinai.on.ca/ca...-cohen-m-d-f-r-c-s-c
http://www.mountsinai.on.ca/ca...mcleod-m-d-f-r-c-s-c

Dr. Brian Taylor (BCIR)
339 Windermere
London, ON
(519) 663-3209

Prof Jack Mackay at St Vincents Melbourne
(NEW surgeon training by Dr Fazio)
Telephone: +61 (0)3 9895 7633
Director of Epworth Eastern Private Hospital
http://www.epworth.org.au/Eastern/Home.aspx
Melbourne Australia

Professor Neil Mortensen (KP ONLY)
Dept Colorectal Surgery
John Radcliffe Hospital
Oxford OX3 9TATel +44 (0)1865 220926
email: Neil.Mortensen@nds.ox.ac.uk

Mr David Bartolo (is retiring soon)
Western General Hospital
Colorectal Surgury
Edinburgh, UK
0131 537 1000 (Main Hospital Number - ask for his sec)
http://www.surgery.ed.ac.uk/sp...ctology/bartolo.html

NEW KP (not BCIR) surgeon: Mr Graeme Wilson
Western General Hospital
Colorectal Surgury
Edinburgh, UK0131 537 1000 (Main Hospital Number - ask for his sec)

Dr Leif Hulten, Goteborg , Sweden (retired but teaching) leif.hulten@surgery.gu.se

Prof. Helge E. Myrvold, Trondheim, Norway +47 95055225 (retired but in the loop)[/quote]

This message has been edited. Last edited by: JaniceM,


Proctocolectomy 1979; Kock Pouch 1980; valve repairs 1981/83/85; Cholecystectomy (gallbladder) 1985
 
Posts: 894 | Location: Orange County, CA | Registered: May 13, 2008Report This Post
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Please add:

Dr. Robert Beart
Colon Rectal Surgery Institute
222 W Eulalia St Ste 100A
Glendale, CA 91204
(818) 244-8161
http://www.glendalememorialhos...ery_Institute/202006

Dr. Beart performs k-pouches and jpouches

Sue Big Grin


Wise men talk because they have something to say; fools because they have to say something. ~Plato
 
Posts: 4105 | Location: Santa Barbara, CA | Registered: January 01, 2001Report This Post
Picture of JaniceM
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thanks Sue.

Host Bill, thanks for keeping this post at the top of the forum! Much appreciated!


Proctocolectomy 1979; Kock Pouch 1980; valve repairs 1981/83/85; Cholecystectomy (gallbladder) 1985
 
Posts: 894 | Location: Orange County, CA | Registered: May 13, 2008Report This Post
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Per a PM new updated info (thanks!!!):

Dr. Wexner's name at the Cleveland Clinic in Weston is Steven (not Robert). When I last visited down there, just about a year ago, with another surgeon who trained with Wexner, I was lead to believe they do not do continent ostomies, but they will scope them.


Proctocolectomy 1979; Kock Pouch 1980; valve repairs 1981/83/85; Cholecystectomy (gallbladder) 1985
 
Posts: 894 | Location: Orange County, CA | Registered: May 13, 2008Report This Post
Picture of JaniceM
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Only Host Bill can edit this master list.

The old one is gone so please add updated info.

Dr Launer passed away last year, but Dr Worsey took over and is highly qualified.

Thanks!


Proctocolectomy 1979; Kock Pouch 1980; valve repairs 1981/83/85; Cholecystectomy (gallbladder) 1985
 
Posts: 894 | Location: Orange County, CA | Registered: May 13, 2008Report This Post
Picture of JaniceM
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PLEASE add your surgeon if not listed, thanks so much!

UPDATED: Here it is in no particular order, US first followed by Outside US.

INSURANCE COMPANIES PLEASE NOTE: THIS IS A LOOSELY COMPILED LIST AND IS IN NO MEANS LEGAL DOCUMENTATION AND HAS BEEN COMPILED INFORMALLY TO USE AS A TOOL FOR MEMBERS ONLY IN FINDING A CONTINENT OSTOMY SURGEON. IT DOES NOT IMPLY THAT THEY STILL PERFORM THESE AND/OR DO ALL TYPES OF CONTINENT OSTOMIES

Continent Ostomy Surgeons
U.S.

Dr.Gregg Shore- (NO LONGER AT THIS PRACTICE)
1201 5th Ave.N.,St. Petersburg , FL 33705
888-825- 1495
http://www.intestinalcontinence.com

Matthew Vrees, MD
Rhode Island Colorectal Clinic, 334 East Ave, Pawtucket, RI
401-725-4888
http://www.ricolorectalclinic.com/physicians.htm

Dr.Jeffrey Milsom
1315 York Ave.,NY,NY
212-746-5597
http://www.cornellphysicians.com/jwmilsom/

Dr.Joel Bauer, Dr.Stephen Gorfine and Dr. David Bub
25 E. 69th St. NY,NY 10021
212-517-8600
http://www.colonsurgeryinfo.com/

Dr. Launer (deceased)
Dr Michael Jonathan Worsey (trained by Dr. Launer)
jworsey@aol.com
http://sdcolonrectal.com/content/view/23/42/
Dr.Gail Salganic (trained by Dr. Launer)
Advanced Surgical Associates of San Diego
9850 Genesee Ave.Ste. 201 LaJolla,CA 92037
858-558-2272

Dr. Donald Schiller
9808 Venice Blvd, Ste 603, Culver City Ca 90232
310-204-4565
http://www.ileostomy-surgery.com

Dr. Fazio, Dr. Feza Remzi, Dr. David Dietz and Dr. Kiran
Cleveland Clinic, 9500 Euclid Avenue,Cleveland, OH 44195
800 -223-2273
http://www.ccf.org

Dr. Steven Wexner is a surgeon at the Cleveland Clinic in Weston, Fl. Scopes only.

Dr. Alex Ky-Miyasaka
Mt. Sinai, 5 E. 98th St #11,NY,NY 10029
212-241-3547
http://www.mountsinai.org

Dr.David Sung
1260 15th St.,Santa Monica, CA
310-395-6123

Dr. Ernest Rehnke
The Palms of Pasadena Campus BCIR Unit, Petersburg , FL 33705
800-336-0789
http://www.bcir.com

Dr Paul Williamson
110 W. Underwood St.,Orlando, FL 32806
407-422-3790
http://www.crcorlando.com

Dr. Rolando Rolandelli
95 Madison Ave., Ste 304C, Morristown ,NJ 07960
973-971-4105 or 973-971-7200
http://www.dr-rolandelli.com/

Dr.Robert Jacobson
3409 Worth Street, #500 Dallas, TX 75246
(214) 824-1730‎
http://www.baylorhealth.com

Dr.Sandy Fogel
213 McClanahan St SW, #404, Roanoke,VA 24014
540-342-6346
http://www.carilionclinic.org

Dr. David Beck
1514 Jefferson Hwy.,New Orleans, LA
800-348-7875(outside LA)1-800-874-8984
http://www.ochsner.org

Dr. Susan Galandiuk (trained by Dr Fazio)
University of Louisville Colon & Rectal Surgery
550 S. Jackson Street, Louisville, KY 40202
502-852-4568
susan.galandiuk@louisville.edu
http://www.louisvillesurgery.com

Dr. Guy R. Orangio
Atlanta, GA
770-995-9528
http://www.gcrsa.com

Dr Kaiser (Kock pouch and Tpouch)
USC Norris Cancer Center and Hospital
1441 Eastlake Avenue
Suite 7418
Los Angeles, CA 90033
akaiser@usc.edu
http://www.usc.edu

Dr. Robert Beart
Colon Rectal Surgery Institute
222 W Eulalia St Ste 100A
Glendale, CA 91204
(818) 244-8161
http://www.glendalememorialhospital.org

OUTSIDE US:

Dr. Zane Cohen, Dr. Robin McLeod
Toronto, Canada
416-586-8346
http://www.mountsinai.on.ca/ca...-cohen-m-d-f-r-c-s-c
http://www.mountsinai.on.ca/ca...mcleod-m-d-f-r-c-s-c

Dr. Brian Taylor (BCIR)
339 Windermere
London, ON
(519) 663-3209

Prof Jack Mackay at St Vincents Melbourne
(NEW surgeon training by Dr Fazio)
Telephone: +61 (0)3 9895 7633
Director of Epworth Eastern Private Hospital
http://www.epworth.org.au/Eastern/Home.aspx
Melbourne Australia

Professor Neil Mortensen (KP ONLY)
Dept Colorectal Surgery
John Radcliffe Hospital
Oxford OX3 9TATel +44 (0)1865 220926
email: Neil.Mortensen@nds.ox.ac.uk

Mr David Bartolo (is retiring soon)
Western General Hospital
Colorectal Surgury
Edinburgh, UK
0131 537 1000 (Main Hospital Number - ask for his sec)
http://www.surgery.ed.ac.uk/sp...ctology/bartolo.html

NEW KP (not BCIR) surgeon: Mr Graeme Wilson
Western General Hospital
Colorectal Surgury
Edinburgh, UK0131 537 1000 (Main Hospital Number - ask for his sec)

Dr Leif Hulten, Goteborg , Sweden (retired but teaching) leif.hulten@surgery.gu.se

Prof. Helge E. Myrvold, Trondheim, Norway +47 95055225 (retired but in the loop)[/


Proctocolectomy 1979; Kock Pouch 1980; valve repairs 1981/83/85; Cholecystectomy (gallbladder) 1985
 
Posts: 894 | Location: Orange County, CA | Registered: May 13, 2008Report This Post
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Just wanted to say thank you for keeping this list up to date and all the hard work it involves. Much appreciated...Judith
 
Posts: 31 | Location: San Diego, CA | Registered: November 10, 2009Report This Post
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quote:
Dr. Ernest Rehnke


Great surgeon for the BCIR. And the hospital is amazing. Best care I ever got since the whole wing is dedicated to this program.


Diagnosed with FAP 9/11. >100 polyps/stage 1 cancer. Cholecystectomy, Proctocolectomy and BCIR surgery December 9, 2011
7/2012 severe dysplasia returned in duodenum. beat that with light. truckin' along!
My blog: http://www.arsetopia.com
 
Posts: 1298 | Location: Philadelphia, PA | Registered: September 24, 2011Report This Post
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There is a list here as well
http://www.qla-ostomy.org/inde...icle&id=34&Itemid=43


Diagnosed with FAP 9/11. >100 polyps/stage 1 cancer. Cholecystectomy, Proctocolectomy and BCIR surgery December 9, 2011
7/2012 severe dysplasia returned in duodenum. beat that with light. truckin' along!
My blog: http://www.arsetopia.com
 
Posts: 1298 | Location: Philadelphia, PA | Registered: September 24, 2011Report This Post
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Hi, I'm new to this site, I've seen a lot of good ideas on here. I wanted to add my surgeon to the list. Dr. David Dietz from the Cleveland Clinic in Ohio. 216-445-2491. I just had my Koch pouch surgery on May 4th. He's a very good dr. with a great bedside manner. I recommend him highly.
 
Posts: 45 | Location: Indiana | Registered: May 19, 2012Report This Post
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Hi Grandma64,
I am going to see Dr. Kiran @ the CC and have a k-pouch put in. This will be my 4th surgery performed by Dr. Kiran since 2007. I have heard so many good comments about this procedure that this si the way I want to go. How are you or anyone else out there feeling after their surgery. Any info would be greatly appreciated.
many thanks and hope you and others are feeling better
shadow man
 
Posts: 1 | Location: ohio | Registered: May 29, 2012Report This Post
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I never did say thanks for the info, so.......THANK YOU!!!!!!! Dr Cohen here in Toronto was amazing, aside from post op pain, the pouch and nipple valve are working perfectly! It's been not even 6 weeks, and already I'm down to 3-4 emptyings a day, AND, for the first time in the past 23 years with my old J pouch, I can sleep right through the night without having to get up and go to the bathroom, that is a miracle in itself!! I only pray the post op pain and weakness goes away, then I'll be perfect!

Thanks again!
Eric Big Grin


Toxic megacolon (dead for 2 minutes), total colectomy, 2 pea sized malignant tumors found and removed, chemotherapy initiated and temp ileostomy created- 1990
3 step J pouch (another 4 surgeries in total, one extra for massive infections) and successful completion of chemo in 1992
Diagnosed with GERD 2011
J pouch and rectal removal, creation of K Pouch - June 19, 2012
K pouch failure and removal (just wouldn't work, too many adhesions) and creation of permanent ileostomy - April 4, 2013
November 22, 2013, laparotomy lysis of adhesion, repair enterotomy and 2 serosal tears.
 
Posts: 1447 | Location: Toronto, Ontario, Canada | Registered: March 25, 2001Report This Post
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Keep up the good work Eric and don't go too fast..Take your time healing...the slower you go now, the better things will be later one...no working out, no abs, no carrying heavy weight (grocery shopping is OUT!), no climbing stairs or bending/stretching/pulling or pushing.
Got it?
Sharon
Please stay healthy and baby that wonderful pouch of yours.


It could be worse...oh, wait..it already has been! then I guess it can only get better from here....
 
Posts: 4740 | Location: Paris, France | Registered: July 29, 2007Report This Post
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Hi Janice,
I must have lived on Mars , as I always felt like an alien and
did not know that these Specialists existed in Southern CA.
Reason being, I did not have much of a problem all these years
with my K- Pouch. I have always considered myself very lucky
to have had this OP in 1980 because it was in the early stages.
I was referred to a Dr. Alex Gerber in the Alhambra Hospital, who
had learned this technic in Sweden. He retired soon after and has
long passed away. Except for enlarging the stoma and a time of
Anemia, oh and retrieving a Plum pit, I had no problems and
acted like nothing ever happened because I was able to do all
the sports that I was used to doing. 5 months after the OP you
could find me on the mountains skiing.
When I finally did have some problems years later, pouchitis, none
of the doctors I knew were around. I had heard though, if it does
happen, get Flagyl. Ever since, I was only treated by a GI doctor
and since I am on Scan Health Insurance with a very good doctor
but nearly no knowledge of the K-Pouch. I feel like I am teaching
him because I have been living with this for 32 years.
After having low abdominal pain for a month, went to the doc.
had a CT Scan and finally after 2 1/2 mos. he found the courage
to look into the pouch with my encouragement. Made a big deal
about it and probably costs lots of money in the hospital, he saw
pieces that looked like stones. I told him about the plum pit and
he got a bigger scope and basket and fished out 3 stone like
creatures but by that time I was pretty sore. I had chosen no
sedation because I wanted to be alert with this fishing expedition.
He stopped and everyone was at WOW. Well, there are two more
Stones to fish for. After the soreness calmed down, I felt somewhat better. I finally had some of my energy back that I
had missed out on for almost 3 mos. and living on Ensure and ground up food. Needless to say, I lost a few pounds and I don't
need to lose weight, I only weigh barely 100 pounds.
MY QUESTIONS IS. DO YOU KNOW OF ANYONE THAT HAS HAD
THIS PROBLEM WITH THE STONES? I do hope that I will be well
again but I will check into one of the doctors near me that you
had on your list. Any recommendation?
I WOULD SURE FEEL A LOT BETTER WITH A DOCTOR THAT HAS
EXPERIENCE WITH K-POUCHES.

THANK YOU FOR DOING THE WORK TO FIND ALL THESE SPECIAL
DOCTORS.

little eagle barbelq@yahoo.com
 
Posts: 8 | Location: California | Registered: August 03, 2012Report This Post
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Hi!! wow, we both had Dr Gerber in 1980! I had no idea or have met anyone else! His assoc's took over and they did my valve revisions but they are retired. I need to check out their offices to see if anyone is doing them.

In the meantime, we found Dr Launer out of Scripps in La Jolla who trained with Dr Kock and Dr Gerber. He unfortunately passed away last year. But, his assoc Dr Worsey is very capable and worked hand in hand with Dr Launer and independently doing KPs.

I haven't heard of stones - I know you can have very old undissolved medication that looks like stones. Did they send them to the lab? if, so what type of stones were they? Also, you may want to start a new discussion with the headline "pouch stones" to see if any members respond....

I'd set up a consult with Dr Worsey. He can also do a scope right there and then in his office. Yes, no sedation..hurts like hell for a few minutes but no biggie as you well know.

How wonderful you found us. I also had no idea until I found this wonderful forum in 2008! I'm PM you...let's get together! We have a small group of KPers that try to meet for lunch annually!


Proctocolectomy 1979; Kock Pouch 1980; valve repairs 1981/83/85; Cholecystectomy (gallbladder) 1985
 
Posts: 894 | Location: Orange County, CA | Registered: May 13, 2008Report This Post
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