what is a t pouch? if you have one how do you like it? thanks

From what I have found, it was being done by a Dr. In California, and the only study that I have seen(the link is somewhere on this board search for t-pouch) only consisted of 13 patients, and I believe all but one were doing fine. But I think this study was done sometime ago. Also I think someone on here sometime ago had a T-pouch that failed.

Dr. Kaiser from USC is doing the T-Pouch. I saw him a year ago and he told me he had done 30 of them. I only know of one woman that had it done several years ago and it was a failure. She had many problems with it and went back to the ileostomy.

My 18 year old daughter is now on her 3rd slipped valve and the only answer to why this may have happened is that she doesn't have scar tissue. We have spoken to several doctors and I seem to get a lot of the IDK but heres a nice bill for you to pay on your way out.
She has had 6 surgeries in all, all with in 17 months starting a month after her 16th birthday.
We have reseaching a Dr. in MI at the Henry Ford about the t-pouch but i'm not so fond of the answers I am getting.
Can anyone tell me can she still have a child of her own?
If the t-pouch fails can she go back to a BCIR.
What about recovery time.
Can anyone tell me anything about the t-pouch

Of course you are worried about your daughter. I cannot believe what you must be going through! I think you should go to the Cleveland Clinic with some of the best surgeons around and they could all put their heads together and figure out a workable plan. The great thing about the CC is that there are a few of them, not just one as in doctor's office where you see one surgeon. They confer with one another and give their recommendations. I sure hope and pray that a solution comes quickly.

I was 21 and had three valve repairs...they never failed but I gained weight and interbation became difficult. It was hard on me but happy I continued to have it corrected. Now it's been over 25 yrs since the last one and all has been fine.

You did not say who has done her surgeries. If they are not a qualified kpouch/bcir surgeon then sometimes the technique is not there. But, with that being said, my surgeon was trained by Dr Koch himself and he took Dr Koch's nurse and married her! I never had any incontinence, just was so thin at the time of each surgery when I gained 10 - 20 lbs it just didn't hold. I have gained 60 lbs since 25 yrs ago and thank god it's holding up...but I gained it years later and gradually.

Don't give up. I realize it's a hard time right now for your daughter. I used to be upset that I was in and out of the hosp with UC then having surgeries was just overwhelming. But, I can tell you now that it was worth it all looking back.

Best to you.

My Daughters surgeon is in CA so Dr. Schiller (LOVE HIM)and my husbands is Dr. Shore in Fl.
Dr. Reicket in MI studied at USC for 6 years.(was recommend from Dr. Shore)
I feel like i'm lost on what to do here. The tpouch sounds like a good option for her but at the same time she is still very young and one day will want kids. Are there young women that have had tpouch out there. My search is going slow.

Abdominal surgery has an effect on fertility that is pretty independent of the exact type. As long as there is manipulation of the organs, particularly in the pelvis, there is the risk of infertility caused by adhesions (scar tissue). This risk is greatest during the rectal dissection, which I presume your daughter has already had. Any further manipulation of the intestines will be higher in the abdomen and not deep in the pelvis.


Dr. Schiller is highly skilled and he should be able to give you and your daughter some statistics regarding infertility rates. These are reasonable questions. Like mentioned before, the risk is there and most of the damage will have already taken place during her earlier surgeries. However, the fact that she does not form scar tissue bodes well for her future fertility (even though it is causing other problems).

Jan

Why don't you have her sign up as a member as she is 18 and may find hope and a kpouch buddy.

Also, many kpouchers/bcir's have had successful pregnancies after surgery. Don't let her get discouraged. I know lots of girls who have their colons but had severe adhesions from endometriosis and got pregnant! Some women with completely normal female function cannot get pregnant..people against all odds had children. A consult with a solid gynocologist is important...everyone is different...no one could answer via this forum.

A colorectal surgeon may only be able to address certain functions.

She is very young who knows what can happen - she may marry someone with kids - who knows? Or adopt!.

Here is the link to discussions (and remember many successful k/bcir's are not members in this forum).

http://j-pouch.org/eve/forums/...?r=18310884#18310884

I had my first Kock in 1979. I had 2 successful surgeries after that; in 1983 I had twins and in 1989 a single birth. All healthy and I was fine.