yup, it is happening again...don't know what or why but apparently here we go...not sure if I can survive yet another one...will get some tests done and go to see Dr. C in Toronto w/the results...not fun
There seems to be a certain stoma/valve pain that precedes the lead...a sort of twisting of the valve...there also seems to be something going on with the pouch/muscle just before it happens...I can not get the tube to go in strait...
S

Hope you have some better news for us. I hope your valve is working okay. Please keep us posted.

J

Sorry you are still having problems. Will keep you in my thoughts. Judith S

Sharon,
are you doing any better?

NO leak in 4 days, the pain in down a bit but I am down to nothing but animal protien and a bit of chocolate to pick up my mood!
Keeping the residue down to a minimum and the gas too helps a bit...but there are moments that I feel like the valve is trying to push its way out like an alien....it feels more positional...the leak happens when I crouch or twist my body and when I am really overfull...Dr. C mentioned that my use of Alli could also be contributing to it although it never did that to me before....
Keeping my fingers crossed for the test on Thurs...then send the results to Dr. C...will see the French surgeon afterwards too to check for the solidity of the hernia reapir....keep those fingers crossed.
Sharon