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The doctor mentioned that I would have a tube in my stoma that went into a leg bag after the k pouch surgery. Is it anything like a regular ostomy bag? Are you able to sleep with it comfortably and move around like normal....or is it hard to manuver and I just need to put up with it for a short time? Just wondering what it will be like.... Colectomy March 2010 J pouch creation Jan 2011 Takedown March 2011 K pouch and anal closure Nov 2011 | |||
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It's what some of us called the constant cath or 24/7 cath..The cath is in the stoma with a longer cath that is attached to a leg beg (yes ostomy/urostomy bag). You can secure it to your leg. You'll empty the end of the bag. You can walk around with it. Sleeping is fine too but maybe not as comfortable if you are a side sleeper. It's a bummer to be honest - for 21 days or so but imperative as this allows continuous drainage of your new pouch and valve to heal. Worth it in the end! Proctocolectomy 1979; Kock Pouch 1980; valve repairs 1981/83/85; Cholecystectomy (gallbladder) 1985 | ||||
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Its not at all like an ostomy bag. The indwelling cath sticks out of your belly and then goes down to a bag. I had a leg bag and a bigger bag that is typically used in hospital for urinary catheters. At home I used the bigger bag and just sort of.... drug it around. Mind you, I spent most of my time on the couch or creeping around, not a lot of movement with an incision that big. When i did venture out, I just strapped on the leg bag. I could hide it easily under sweatpants, which is all I felt like wearing at that stage anyways. I laid the bag on the floor at night because the tubing for the big bag was long enough to accommodate this. I could sleep on my back or side ok. I found it uncomfortable and annoying, however its hard to say how much of that was just due to just having had major surgery. I had mine just over 4 weeks while the valve healed. Some people have it less than that, I think it varies per doctor. | ||||
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As Kaydbird said, whichever bag you're using, the big one or the leg bag, the tube does stick straight out from one's belly about an inch or two before heading down to the bag. My tubing would kink at the bend so that only a little poop could flow through the tube. So we went to our local hospital to see the ostomy nurse who used part of a popsicle stick with tape to stop the tube's acute bending. She said to do this when I got home. My husband asked "Where do we get the popsicle sticks?" Duh! She said just buy a box of popsicles! Admittedly, when one is frazzled, one doesn't think straight, but it was good for a giggle. | ||||
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Thanks guys, for the info. It is useful to know the tips and tricks! Colectomy March 2010 J pouch creation Jan 2011 Takedown March 2011 K pouch and anal closure Nov 2011 | ||||
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I used the big drain bag (like the urinary one) and just put it into a pretty shopping bag and carried it around in style (1 day it was Armani and I felt so chic! My girlfriends kept bringing me their fancy shopping bags so I alternated with Chanel & others too!) If I wanted to be more discrete I just safty pinned it to the inside of a large pesant skirt. It was only annoying when it sloshed around when over full or if I forgot to properly close the drain end...oopps! Sharon It could be worse...oh, wait..it already has been! then I guess it can only get better from here.... | ||||
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