Hello, I have been battling fistulas for past few yrs and trying desperately to get my j pouch reconnected but after all the remicade/setons/wounds etc they are saying the best thing is to have the j pouch removed as I can't be on remicade&6mp any longer. I am really upset I really don't want a ileostomy forever - Is there any other options I have heard about the k pouch or is it called a bcir - is that an option for someone with fistulating crohns disease ? Also what is involved in this operation ?

Thanks

I couldn't tell you if the Kock or BCIR is an option for you with Crohns and fistulas.
Janice had recently posted the name and contact info for a doctor in the UK who was doing Kocks.
He may be the best person to answer your question.

Professor Neil Mortensen
Dept Colorectal Surgery
John Radcliffe Hospital
Oxford OX3 9TA
Tel +44 (0)1865 220926
Fax +44 (0)1865 851173
Neil.Mortensen@nds.ox.ac.uk

Hi Pinkgal, Send me a private message and I will speak to you about K pouches if you like, I am across the pond in France and have had one for 30 + years...a couple of guys do them in England plus elsewhere...but it is a bit complicated in Europe.
I have no problem to call you back.
sharon

Professor Mortensen did his first Kock pouch operation in Oxford on me in November 2006 after a failed j pouch operation done elsewhere. I had struggled with it for 12 years and he had hoped to redo it. Unfortunately he found that this was impossible as it had obviously leaked in the early stages and everything was stuck like a rock in the pelvis.I woke to find that I had a permanent ileostomy and was very upset.
After reading about Kock pouches on American websites I asked the Prof if I could have one and he agreed. Professor John Nicholls from St Mark's, London came to help him as he was an expert in this field.
For some reason Kock pouches were more or less abandoned in the UK with the introduction of the J pouch.
I am thrilled with my Kock pouch but understand that like the j pouch it is not usually considered for people suffering from Crohn's. It would be worth contacting the Prof for his opinion. He is a brilliant surgeon and such a lovely man. In fact the whole of the colorectal team at the JR is excellent - very different from my local hospital in Staffordshire.
I wish you the best of luck.

Julie

Thank you for your replies . I do not know if it is an option for me yet but fingers crossed it will be