i at the moment have an ileostomy from having suffered uc for a year and want surgery again i think a k pouch would suit me better than a j pouch due to i wouldnt be comfortable with the possibily of incontinence with a j pouch.

does anyone have any information like how many times they have to empty their k pouch a day and what happens at night or even any good websites were i can find all this information.

Hobbsy, everyone is different, but the average, is emptying the kpouch every 8 hours. So once you have gone thru the surgery and all has settled down, you would "probably" empty 3 times during the day.
For instance, I empty when I get up in the morning, and then around 3:00 to 4:00 pm, I empty again, and then just before I go to bed.
Now you can empty sooner..........especially if you are going out, or what ever. You think ahead, and plan accordingly.
Every once in awhile, I do have to get up in the middle of the night or very early in the morning. But only, as I said, once in awhile.

If I can be of further help, just ask.........
Good luck with what ever you choose to do.

hello again just wondering if their are any major problems that you have had and where did you have your surgery done.

my thought is, that if incontinence is your issue - you can do a lot yourself to keep that from happening...

exercises that train your butt can keep incontinence from your door - atleast for a day to day basis...

i've had my pouch for abour 6 years - have only had incontinence problems 2 times.... the first two days after takedown, and once when i had some kind of stomacflu - that went on for about 3-4 days....

i can hold it for up to 8-9 hours, when im healthy - 4-5 when it's inflamed... and i dont have to plan ahead..

if i had the choise, i would NEVER get an ostmy again - k-pouch or otherwise.... but thats not all up to me - still, i would never willingly chance the last 6 years of healthy normal living with my j-pouch....

Hobbsy.......I don't know if your question was to me or someone else........
but I will answer you anyhow...<grin>

I had my surgery here in San Diego with Dr. Launer.
YOu will ask one question and get 20 different answers. But at least we can try to give you our own experiences.
Ladytroid has a Jpouch and I have a Kpouch, so there could be differences in when we need to plan ahead.

I did not have any problems for the first 11 years.........which is pretty good I would say.
I caused problems by being stuck on a airplane for over 10 hours and I had left all my stuff to use in the ladies room at the airport before we left...........not a good thing to do....I really got sick and caused problems. Thanks to bad weather etc. and my stupidity.

Don't want to go into all of that now, but as long as you empty when you feel the need.......all will go well.
Jaynie

Hi Hobbsy,
I have had my k pouch since 1976.
I saw you were in the uk, which hospital have you been in touch with ???. as there are not many who know anything about the k pouch in England.
Sue..

I have a BCIR which is a modification of the K pouch. When I am very busy, I only drain my pouch in AM and PM. On weekends, I try to be kinder to my body and I drain 3x a day. I can not remember the last time I had to get up in the middle of the night. I would love to have not had UC and have not to loose my colon but if you have to have altered plumbing, the BCIR has been a wonderful experience (for me!). Best Regards Cindy

Yh i heard about the BCIR and thought it could be a better way to go , i havent spoke to any hospitals because im not seeing my old surgeon till next month but i may have to save up and come to the states due to i dont think they will do the bcir in england.

Hi Hobbsy,
There is a doctor in Oxford who has performed a k pouch last year, his name is Professor Niel Motenson,If you need to know anything more you can email me and I will help you as much as I can.
Sue.

Hi...I emailed the Professor and he is performing Kock pouches...here is his response:

Dear Janice,

There seems to have been a revival of interest. We have done 3 in the last year. Please do add my details to your list of surgeons.

Neil

Professor Neil Mortensen
Dept Colorectal Surgery
John Radcliffe Hospital
Oxford OX3 9TA
Tel +44 (0)1865 220926
Fax +44 (0)1865 851173
Neil.Mortensen@nds.ox.ac.uk

thanks for the oxford tip but i fought the BCIR is more reliable than the k pouch. do u no or could you find out if he would be willing to do the bcir or if he has done it in the past.

thanks

I suggest you contact him directly....all his contact info is listed.

I don't feel that the BCIR is neccessarily more reliable - it's just a different type of valve that Dr. Barnett created. Both are continent ostomies.

Good luck!

Hi Janice,
Thank you for your email and your contact information on Dr Mortensen,
I was looking at the amount of times you have had a valve repair,could you tell me some of the first signs that you thought your valve was not working correct, the reason I am asking I have been having a few niggling problems, and with my pouch been over thirty years old I thought it was getting worn out .

Thank you
Susan

Hi Susan...I never had feces or gas leaks, I just couldn't get my catheter in. At one point, my surgeon had me use my pinkie finger (keep my nail very short) to insert into my stoma to dialate.

As with you, I had a very kind surgeon in a very small hospital so he was nice enough to meet me at his office day or night to help insert and never charged me a dime.

I was sick last April and a GI dr found erosions located right below the stoma before the valve. That's when I sort of panicked and found this forum. All those years and I had no idea how other long timers were doing.

I got approval from my HMO to see Dr. Launer and he scoped and said valve is great, ignore the erosions and my pouch is in great shape. He said that they are now seeing a few of us long timers getting erosions that build up scar tissue and cause some valve probs - but you can have it repaired. Wear and tear - but not worn out by any means.

If you're worried, it's good to have a scope - I am so much more relaxed now - Dr. L told me to just go on about my business and not give it more thought. Although it's hard to not worry...contact me anytime..here or via facebook.

are the valves better now due to medical advancement, i really dont want to be going in for valve repairs every 2 years. also sorry to be personal janice but whats that operation you hasd in 1950.