I'm 23 and I have FAP. I was wanting to know if there is anyone else around my age that has FAP or Gardners syndrome.

Hey,
I'm 21 and I've had my j-pouch for...nearly 8 years now. I have famililial polyposis coli. I got it from my dad's genes. I got all my bad genes from him lol.

Take care
Jenny

im 25 with FAP. diagnosed in 96, surgery 96-97

Both my kids have FAP. My daughter is 14 now, boy time flies. She had her j-pouch surgeries at age 12 and has zero problems. She is still scoped, upper & lower, every 6 months and all is well. My son is 9 and also has FAP. He has not had his surgeries yet. We hope to delay until after puberty at least. We'll see. He'll begin a new trial soon trying Celebrex to keep the polyps under control. They inherited this from my husband, he's 35. He was diagnosed at age 20 and has permanent ileostomy.

There are many members here who are young with FAP. (Maybe not as young as mine, but there are several others) Maybe they'll come along.

Hi. I have a story like Ranae's life. I have a daughter going to be 14 with FAP and a son going to be 12 with FAP. The disease was inherited through my former husband's family. I remain the family's knowledge seeker and chief PITA with trying to get everyone on the stick about regular monitoring. My father in law, who brought FAP into the family via his mother, is turning 80 this coming summer. Other than adhesions, he is in excellent health and is very active!!

i'm 25 (er. um today is my 26th bday, so i guess i have to start owning that age)
and two months ago found out i have FAP (through my father) AND cancer.
undergoing chemo and radiation now, soon to have the colectomy (and then, god willing, a jpouch)
we should start our own little collective here. at least to be able to discuss the things that come along with this. FAP is such a silent horrible thing to have
becca

New to the site. I am 29 and was diagnosed with FAP three years ago with my J-pouch surgery the same year. I have a 19 year old brother, 16 year old sister and a 22 year old male cousin all with the same genetic disorder. Before the diagnosiswas made, I lost a grandfather (the disorder is carried on my mother's side) and a uncle to colon cancer. Two months ago I had the genetic testing to see what the marker is for my FAP. It was found and now future generations can simply have a blood test to see if they have it. I recommend that genetic marker testing be done. All those that have had the J-pouch are all living active and heathly lives with little to no complications. You are not alone.

Hi, I am 33 and was diagnosed with FAP when I was 13, my brother now 23 and sister 29 have being diagnosed with it, along with our mother and her brothers and sisters, we have had at least 1 cousin that we know of that has had FAP really bad. My sibblings and I all had Total Collectomy at the age of 16, since them we have been on 12 monthly check up, generally a colonoscopy, until recently for my self when my GP discovered the i had approx if not more 50 poloyps of the small bowel and rectal stump. I have tavelled to see a Colorectal Surgeon to talk about my options, I will be having my Protectomy/Ileo-Anal Pouch and Ileostomy on 9 November in Newcastle. So things are a big step here at the moment. Will be getting my children tested when they are 10, so once I recover from this operation will be organising for my son to be tested. With fingers croseed, by my children understand what happened for my first operation as we have sat down over the past 12 months to talk and telling them that they may require the operation depending on the gene's testing now.

Hi, Sorry to just see this post now.

I am 30 years old, diagnosed with FAP/Gardner's at 19. I am the first in my family to have it, and hopefully the last! I am 28 weeks pregnant now, and plan to test my baby for the mutation within his/her first year.

Hello I'm 26 and have the horrid gene. (FAP)

I have 2 brothers and 2 sisters. So far my Mother and my older Sister both have the gene. Sister was the first and died at the age of 23 from colon cancer. Mom got her dx 2nd, this mothers day, she is doing ok as far as I know (don't really talk anymore) and then there is me 26 years old. So I guess 2 out of 5 kids is not bad right? I'm praying that my kids don't have this gene.

Hi, I'm 24 and haven't officially been diagnosed yet. My GI and the pathologist who did the report on my colon have both said I appear to have a Mixed Polyposis Disorder. Not too sure what that means. I'm booked to see a genetics doctor in early January so I guess I'll learn more then and get tested.
I'm the first in my family to have problems, but I have 3 siblings who are going to get scoped/tested because of the mess they found in my colon.

I am now 34 years old, but I was diagnosed with FAP when I was 27 years old (or somewhere in there). I also have Gardner's Syndrome, which goes hand-in-hand with FAP.

Hi, I am 33 yrs old and was diagnosed at 15 with FAP that is from my mothers side of the family my grandfather had cancer and has a permanent colostomy since he was in his early 30's, my mother has only had step one to remove the colon, my uncle (like me) has a jpouch, I have 2 children and I have had my oldest son (17) tested and he doesn't have the gene. (Thank God!) I have not had my youngest son (10) tested, but he will be getting tested in the near future. I have one brother and he has not and will not be tested, but he says that he doesn't have any signs. I still talk to him every chance I get about getting tested, but he won't listen to me.


LOVE LOVE

hey i'm 22 and i was diagnosed when i was 11. I had IRA operation and Chemo in 1997 and had J-pouch surgery last year. All i hav to do is see my Dr annually... for now that is!!
I hav a 2 year old daughter that might have this gene but we will deal with it when the time is right!

I am 30 years old and was just recently diagnosed with FAP. What is gardner's syndrome, and how do I know if I have it? It doesn't sound much worse than FAP.