hi

Im 26 F from australia melbourne. I was first diagnosed with UC at 17. I had my J-Pouch performed in 3 steps. First step at 17. Anyone else from OZ??

This message has been edited. Last edited by: van,

Dear Van

I am a newcomer to the club. Diagnosed with UC in Jan 05. Colon out Jan 06. Pouch in use Nov 07.

A really bad journey, rapid and debilitating. Infection from surgery. Emergency flush out. Slow to recover.

Now life is great. Have to go only 4 times per day. Take codeine pm and have 10-12 hours overnight without need to go.

One of the really lucky ones from all accounts.

I had no problems with the ileostomy and was reluctant to have more surgery.

Was talked into it by Jade (another J-Poucher) here in WA. Bless her heart, it is the best decision I ever made!

Hope your experience has been good.

Ross.

Im From OZ!! Bendigo - Not too far from melbourne!

I suffer from anal fistulas. over the past 4 years mine have recurred 3 times. Was great to find this site!


Thanks

Hi Van,

I'm 35 and had j-pouch surgery in one step this March. I'm usually in the chat room around lunchtime most days if you want to pop in and talk. I live in Mackay in Qld and have found this site to be a god send!
Sassy

Hi
I'm in Perth WA - I had a Jpouch fashioned secondary to rectal cancer in April this year. It's been quite a journey, now I am 8 days post take down of my ileostomy and theres a whole new meaning to 'ring-of-fire'. Unfortunately I am very impatient and just everything to return to 'normal' . If there are any hints to preserving the rear end I could sure use the advice.
Rels

Hi
i'm from Sydney
It's great to have a support group like this & read similar life stories.
I was diagnosed of 8yr's old with IBD. By the age of 21 the IBD was re-diagnosed as UC & sure enough UC reared it's ugly head. By 24 my large colon went septic & had emergency surgery. 6 months later attempted J-Pouch surgery & was complicated by calicification of scar tissue. This coming December I am contemplating trying again for J-Pouch or removing my mucus fistula & permanently having the pouch.
This site is a great help & answering my most of my questions.

Hi
I am from Moree, hat a collectomy in 1991, will be having pouch operation early November, I am in the 4th Generation of FAP and there is a 50% that my 2 children have it. Will be travelling all the way to Newcastle to have my operation, my specalist in Tamworth cannot handle this big of an operation.

This is great to have all this information at hand, my new specalist really did not give me any information only the choice of 2 operations and that was it. a 10 minute consultation and a 540 journey back home.

Hi Kam,

Welcome! I'm so glad that another Aussie has found this wonderful site.

There is so much information here, you'll soon know more than the doctors! Also, some of the regulars here have FAP - including Chuckus, Becca (cynnycal), Jessica, Ranae's family - so feel free to ask any questions you may have about FAP and the j-pouch.

Best of luck with your surgery.

Thanks Nikki2, i will contact them soon to ask them a few question. If it was not for this site gees man, I would be stuck not knowing what to expect and the advice, well there is plenty of that to take in, my specalist did not give me much, just what operation when and take these multi-vitamins tablets and impact drinks at this time and in hospital for 10 days. that is all I got told. Please do not hesitate to contact at all

G'Day all!

I'm back! As if you missed me! Just crawled out of the dark abyss! Hopefully I will stay on top this time.

Happy New year to one and all!!

Cheers

Richard

Hi Van, I am from Perth.

Had total colectomy 2004, j pouch 2005 and takedown 2006. Life is great and no longer in pain.

39 year old male.