I have a permanent ileostomy and "barbie butt"... or I had a closed bottom until a hole opened up there because of my period. There is a "hole" in the vaginal wall so that my period flows over into the empty cavity where bowel used to be and comes out of this opening (a 3 inch sinus tract had developed there. I had surgery to remove the sinus?). After my period, it closes back off, mostly, so then there is pressure there and a good bit of pain. Also, if my husband and I have intercourse between periods, when the hole is closed, I get pressure and pain, I guess because the sex gunk crosses over into the cavity and can't get out Frowner

My surgeon tried to patch the hole during my last surgery (a surgery to remove the sinus tract), but it obviously didn't work. He thinks that a hysterectomy will fix the problem at this point. I understand that it will fix the problem of menstrual flow crossing over into the cavity since my periods will stop; but won't the "sex gunk" still cross over with intercourse?

What are the other options for dealing with this? I really want to have another baby if at all possible, which I know sounds crazy, but not really. I'm more healthy right now than I've been in years, this vaginal hole aside.

I appreciate any and all input that you may have!!

Sounds like a real pain. I had a fistula open up after my barbie bum was put in. I leaked some sort of everyday body fluid. I had a gracilis muscle graft done and it is completely healed up. This is the only thing I have heard of working with chronic fistulas like ours. Mine was done by a plastic surgeon in SC.