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How does one protect their stoma? I am so paranoid that I will somehow traumatize it. I find myself holding my hand over it whenever I am around a crowd of people or I am playing with my dogs. I am especially uncomfortable in situations that require contact like hugging or even sitting next to someone. I feel really disconnected because of it.
✫annie✫ Cuffitis, PVF, Pouchitis, umbilical hernia, type 3&4 adhesions. JPouch re-do & ileo, hernia repair, mucosectomy in CC on 9/12/07. Take-down 04/02/08 |
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Its fine
Jason - Pa statie7104@yahoo.com Step 1 Jan 06 Step 2 March 06 Spleen & Gallbladder June 06 Pouch Disconnect / End Illeo May 07 |
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I'm paranoid too.
I've made a search and i found some products could help. http://www.cmostomysupply.com/cm_html/p_stomagd.html http://www.cmostomysupply.com/cm_html/p_stomspt.html http://www.ostomart.co.uk/ostoshield.htm If anybody had dealt with this products or got any other ideas his feed back well be very appreciable. |
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Hi Annie,
Think about the likes of JillM who has a lively toddler. You'd never pick them up if you were too scared about injuring your stoma. I've had my nephews climb all over me but I don't even think about Wee Willie most of the time. I wear what I want and do normal everyday stuff like housework and gardening. I did used to worry about my cat Nermal sitting on me when I first had my stoma, but not because I was worried she'd do anything to the stoma, just that she might put a hole in my bag with her sharp claws! Unless I were doing a very physical job or taking part in a contact sport It would never occur to me to wear anything to protect Wee Willie. Like Jason said, it's all about confidence and that will come with time. One glass of red wine per day is good for the heart..... it's just that mine's a big heart so I need a very big glass!!!! D-| Cheers! |
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Annie, I was worried in the beginning too, but after a while, you actually forget you have it. Depending on who was driving the car, sometimes, I would hold the seatbelt so it wouldn't crush me when they hit the brakes....lol
The only other thing I was really careful about was my sister-in-law's dog. I'm afraid of dogs to begin with, and this monster loves to jump on me, so I was always on alert around her. But like Shell, and Jason said, it does come with time. When I think back, it amazes me that I did all I did with my ostomy. I hope you find it easier soon, janna |
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I have a lively 5-year-old son who was only 3 when I became an ileostomate. No problems whatever. I'm careful when picking him up not to dislodge the bag from the wafer, but it's never occurred to me to protect the stome. I'm with Jason on this one: not to worry.
Diagnosed with Chronic Ulcerative Colitis in 1986. First-step of 2-step j-pouch surgery January 9, 2006. Takedown June 16, 2008. |
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SHell and Rudolph are right - my toddler kicks my stoma 20 times a day. Not to mention the times he runs into me, pulls on my shirt, often grabbing the bag, follows me into the bathroom and pats the bag, etc...
Everyday activities certain aren't a problem. If you do something more involved like Jason (full check hockey - yikes! Not for the stoma, but for all your other body parts!) there are things you can purchase, but they really aren't necessary for daily life. BTW Jason, we are a hockey house, with two Boston University graduates - until we had Alex we were regulars at the Beanpot tournament (now we watch on TV) - BU, BC, Harvard and NOrtheastern in a 2 week playoff. BU has the most wins in the history of the tournament And Shell, I love that your cat's name is Nermal |
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Jill, another thing then I love about you! We are a hockey family 100%. Season tickets to the penguins (6 of us) and been playing forever. Watch the bean tourny all the time
When I play hockey I wear a lacross rib protector over the rib cage/stoma area. Jason - Pa statie7104@yahoo.com Step 1 Jan 06 Step 2 March 06 Spleen & Gallbladder June 06 Pouch Disconnect / End Illeo May 07 |
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Of course you know the Beanpot if you are that involved with hockey! The new BU arena is gorgeous and we had season tickets the year before Alex was born. My husband can't wait to start taking Alex to games. OF course we're all baseball in the summer/fall being part of Red Sox Nation, but hockey is our winter!
My husband keeps asking what I'll say if Alex wants to play hockey - I'm not a morning person and you hockey players practice at 5am! |
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Shell brought up a really interesting point about Nermal, that she never uses her claws on Shell's tummy. I also noticed that about my parrots. They, especially my crazy ****atoo, like to jump on us when we are lying down. Ever since I got my ileo, my birdies act more careful when jumping on my belly or walking around on my belly. I don't know if they can feel a bump there and that's why or whether they are just sensitive creatures. I'd like to believe the latter. They definitely act gentler and careful when either myself or my hubby are sick. They too have pointy claws at the ends of their toes and if I don't keep them trimmed, they get really really sharp.
SHELL - Just be glad Nermal is a girl and only does that "padding thing", unlike my very peculiar male Quaker Parrot who does what Doug & I call "the dirty birdy dance" on whatever he can grab with his foot and hold on. I believe that should probably be a "You Tube" moment. Sorry to go off topic. But I really related to Shell's comments. Cat A bird does not sing because it has an answer. It sings because it has a song. ~Chinese Proverb |
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