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When I had my end ileo, I used Hollister convex 2 piece (after my abdomen wasn't so tender and I could switch from 1 piece. I only used Eakin seals...nothing else. My skin was always clean, they prevented leaks (which is why I started using them). Maybe you should at least try them. Any supplier would send you samples..or your ET
Kock 1979; end ileo 2003; Kock 2006
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| Posts: 582 | Location: Florida | Registered: October 31, 2004 | 
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I used the paste for a while and it ended up being a big part of the burning pain I was having. I think there is a lot of alcohol in the paste and it irritates the skin.
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Paste is what irritated my sons skin the most. It has the bad kind of alcohol in it. The adhesive removers we used at the time also contributed to skin issues. We switched to alkare wipes, use no paste and use appliances specific to ileos (hollister new image extended wear). We also use an eakin under the wafer. I would definitly try to get rid of anything with alcohol in it. Good luck..
Laura 6 y.o. son with CD -colectomy at age 3 with end ileo -IRA with loop ileo 8/08 remicade/elemental feedings
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| Posts: 88 | Location: USA | Registered: April 01, 2008 | 
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My suggestion is get Eakins and Convatec convex moldable wafers. Dump all the preps and removers and other things. Maybe stomahesive powder if needed, but keep it as simple as possible. Paste was evil for me, so hard to get off and my skin just stuck to it even as it came off.
Convatec works best for me, but every is different. If Hollister isn't working, change it up. Suppliers or the companies themselves will give you free samples.
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| Posts: 2767 | Location: West Roxbury, MA 02132 | Registered: April 14, 2000 | 
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Interesting theory about the paste, especially since I specifically recall my stoma nurse mentioning that the paste can be very irritating to the skin, especially while the stoma is new and the skin around it is still healing. I was told to use the paste sparingly and to always dust the skin with Stomahesive powder first. If you have particularly sensitive skin, it makes sense that this might be the cause of your problems. Keep us posted!
Dx'd Pancolitis June 14, 2005 Emergency subtotal colectomy/end ileo, July 6, 2005 Step 1/loop ileo September 26, 2007 Step 2, March 28, 2008
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| Posts: 462 | Location: Toronto, Canada | Registered: March 18, 2009 | 
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