Well I think they found the issue , I have been in 2 coma's and 14 surgeries related to UC/crothns and my doctor sent me to a plastic surgon he took one look at my wounds not healing and said its the mesh casuing this...


We asked them 3 1/2 yrs ago if it was the mesh because we got something in the mail stating we may have bad mesh in my casuing all sorts of in fection and other issues and my doctor said no.


Well this new surgeron says yes... so they are going back inside and re opening the wound again , I had a open wound which also causing me to leak all the time drives me nuts.

I was also told I would never do my job again due to all my issues..This new doctor said wrong he can fix this we will see..

He said they will re open me use my own skin to close the open wound that I had since 06 and get rid of this mesh that is causing me not to heal...

I,m so tired of taking care of this wound for almost 4yrs I been taking care of this wound that wont heal drives me nuts.

All of a sudden last week I woke up and out of my wound came pee I was like nice then I started peeing blood. last yr when they did the pouch removal, they hit my bladder and they said was fixed well during my stay they had found out that was not the case it had reopended..

It took about 5 months to heal and I had a pee bag for 5 months...

After the first surgery I had to self cath which sucked ..anyways I will ahve 3 surgerons here this time..


Plastic, colan and urlogy doctor , this time I hope they fix me , I need my life back..

I lost my house and just got a house back after all these yrs and if I dont get back to work soon I will lose this one..

My state is broke they say and my wife and I have gotton zero help from the state...and we have tried so many times , they have helped my sister in law who is healthy and loves to have alot of kids, but if your sick in my state they won't help you go figure.........

I get so angry how they don;t care about the ill people in this country, even if I get better I may never recovery money wise again, I owe medical around 2.5 million dollars right now and they can;t seem to fix me go figure...


If they don't fix me this time i'm will be done trying I will just say the hell with it and let god take over i,m so tired mentally and physically of this so this will be there last try to make my life liveable, my wife and I are like brother and sister now...

Thye distroyed my nerves in my main area, we havent had a sex relationship in 4yrs, and we cant have kids which hurts her so bad...

I'm really surprised we are together still, but trust me we arent doing good... because of all of this and if we lose this house and this surgery goes bad, I think we will be done with for sure this si getting to much for us and its not fair how this country won't help the sick people.

When I worked I made over 100k a yr and they took 1,000 a week in taxes out of me and I never can get help, there is people who never worked other countrys etc who get help all the time just piss's us off...


Also woman sorry ladies who choice to have a baby and get devorced and they get help which they should but what about the ill people??


I been told this by my state rep thats how it works in our state and it ticks me off , so if my wife cheats and get a baby we would get help makes no sense. I have told my wife to do it and she gets mad but its not right that we have to lose everythingw e worked for all these yrs because of how the system fails us..

Right now working with the state rep and a church to help us , still no luck, I been sick going on 7yrs... adn stil no help from this crappy state.

I even wrote to obama and newspapers no one cares if I live or die or get help, this country makes me sick..

Anyways that is my rant I don't get to post much as i'm in the bed most of my life for the past 7yrs , because of the pain and the leaking ostemy's and wounds etc.

I want to thank the people through the yrs for your support and sorry I dont get repsond to many people fast enough. My eye sight is failing me and I can barely type any more,...

I was 28 when I became ill now i,m 34 I wieght 78 lbs still but not losing anymore finally but still way under weight.

Well I wont post back for awhile take care to those sick,and those recovering god bless.

Hi Jeff,
I really don't know what to say except, I am so sorry to see what you are going through. You and your wife will surely be in me prayers. I pray that God will fix things in a miraculous way, and you will be blessed beyond measure. Hang in there...May God bless, Randy

Hi Jeff,

I have had UC since 1996 and am considering surgery. I am sorry to hear about what you are going through. I do care if you live and pray that things get better. I don't know you but am proud of you and your efforts and that you continue to fight.

Phillip

Jeff, I am not much of a believer in miracles, but if anyone deserved one, you do. You have been through so much with so little support, I am inspired by your ability to keep fighting. I think you must have a wonderful wife too. I sincerely hope that change occurs in time to help you and everyone else in similar situations as you. You are right, we should be able to help everyone who needs it and the system is wrong if you are left on the outside with no support. And to be perfectly honest with you, I don't care if it means paying higher taxes. It is the right thing to do.

I too, am very proud of you. So don't give up on your plan to train for another vocation.

Jan

well after 1 1/2 in the hosiptol i,m home,

ostemy still leaks , but so far wounds looking good there nearly gone but they gtot rid of one problem created a new they removed my rectum and when they did it when they sued up my hole area the skin sticks out further than the crack, and I sit on it , man it hurts... so guess what they have to go back in again to ifx that and see what they can do about this leaking ostemy i,m gonna law down the law I had enough....


14 redo's is enough there gonna plan a good plan or there not touching me , also when they did this one for 6days I told them I was bleeding internally the plastic surgeon was good but what a jerk , never would listen to me then 6 days later goes your bleeding we have to go back in... sigh they will never listen to me nor my wife, we laugh about it and cry same time because there so stupid.. drives me nuts.

also I had heart issues and blood pressure issues but they seem better now.

but they seem to fix my bladder this time and my wounds are looking to heal this time and that nasty hole in my stomach is gone. so some good soem bad wish they didnt touch my rectum.... anyhow now just fighting narco addiction.. on subonxe SP right now stuff works great starting to feel better since on that as the nacros where messing me up.. hate drugs..