Hi everyone,

I was just wondering for those of you have ostomy belts, where did you buy them?

Handi Medical Supply, St Paul, MN. Google them, they are great to work with.

I use the Phoenix ostomy belt, found info in the forums about it and bought them off ebay. Good luck

I am on Nu-Hope belt #2. My first was a 4" that I wore with my end ileo. My new one is a 5" that I wear with my new (formed Monday, Jan 4) loop ileo. I love the belts because I have some divots and they help keep my appliance on for way longer than I could normally. My last appliance prior to surgery I had on for 7 days and I wear Hollister FlexWear (not extended wear). The ostomy nurse said that once Arnold has shrunk I will probably be able to go back to a 4" belt. I originally tried a 1" belt but it did nothing for me. I need the larger belts to keep my appliance on. I got my belts from my ostomy nurses at Mayo but I know that I could buy them from EdgePark also.

Hello everybody from Australia, I've had a J pouch for 18 years that has been slowly deteriorating since my hysterectomy in 2000. The surgeon thinks the nerves were probably damaged. I have now decided(after spending most of my time in the loo again, not to mention the pain, just like UC)to go back to the illeostomy, but what is this belt you are all talking about, last time I had an external appliance no mention of this was made to me, how do you use them, it sounds like everybody likes them. I see my surgeon soon(currently on Endone, Panadeine Forte, Immodium for the pain), and this time I'm taking my husband, to insist that this problem is sorted out, no more
flagyl antibiotics for me. On my last scope 9 months ago, everything was fine, but they inserted 3 implants(PDQ?), since then the pain in my rectal area is driving me insane, so this is why I'm going back to the bag. Anyway, this is a fantastic site, I stumbled upon it by accident, and didn't realise just how big the j pouch world is. Thanks for any information, Heather

Jennie,
What kind of belts are you talking about...the ones that hook onto your wafer or the ones that support your pouch without actually being attached directly to it like the Phoenix ones?

I have a few brand new ones that are product specific if you are looking for the ones that attach to the products..I think they are Hollister and Marlin and not sure of the other, but they are still in the package. Let me know and I'll dig them out and tell you for sure the brand of wafters they attach to and I'd be glad to send them to you if that is the kind you are looking for. The hospital gave me some plus I got some from my home health nurse through Edgepark.

Becky

Several years ago I saw a post re the availability of wide (2" ?) ostomy
belts. I made contact with a supplier but never (regrettably) followed up.
The advantages seem to be twofold: the belts don't roll or curl and don't
dig into your skin. Would anyone know of a source for such a belt. If so,
I'd be grateful for any information you can provide.

Many thanks,
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This message has been edited. Last edited by: <Abigail40>,

Hi Jennie,

When I had my ileostomy, I ordered my ostomy belts from the same company through which I ordered my other supplies. The belt helped cut down on leaks for me, as it provided additional benefit to my convex pouching system.

Thanks for all replies on belts, I have no idea about these but no doubt will be finding out once the illeo is done, most of the stuff is on the free list here, so maybe thats why I hadn't heard about the belts, they might not be considered an essential so therefore not on the list of stuff, anyways now I know about them I will definitely ask the stoma nurse about them, go back to the specialist in 2 weeks, and gonna insist summit be done about all this hassle. Anyway thanks again, Heather

Hi everyone,
Here are some links to some resources - providers of belts. When I had my stoma I just sewed a simple lycra belts the width of my pouch, which i fastened with velcro, with inserts for the bag to sit in. If you know a sewer maybe you could ask them to craft you something.

http://www.ostomysolutions.com/

http://www.ostomy.com/

I have been wondering since I got my Phoenix belt, If when sideways, does the "Goo" eat the wafer quicker, since it is in constant contact. When the pouch is hanging down, the waste goes to the bottom, thus limiting the exposure. I love the Phoenix, but am hesitant to use it much due to this worry.

The Phoenix belts have changed. They went to an adjustable design, and it made them bulky. I ordered one last week and returned it already. The old design was great, supported everything and left no "bumps" that would show. I asked if they had any of the old belts left. No was the answer and they did not see ever returning to that design. So I am going Saff's route. Talked with a sewing shop.. showed them my older phoenix belt, they said they could make them.

Mike.. I only wear my belt when I go outside the house. roughly 70 hours a week.. I still get a week wear time.

I never take mine off and get anywhere from 5-7 days wear time. I think the belt helps. My insurance doesn't cover anything for me, so I need everything to last.