please support our sponsors
Register to post messages
chat | guestbook | ibd links | dietary guidelines | faq's | donate | mailing list | support
j-pouch people
The J-Pouch Group    J-Pouch Community    Forums  Hop To Forum Categories  J-Pouch Forums  Hop To Forums  Pouchitis    pouchitis and cuffitis or is it just candida? any thoughts?
Go
New
Find
Notify
Tools
Reply
  
pouchitis and cuffitis or is it just candida? any thoughts?
 Login/Join 
Picture of Ms.M
Posted
I had my 1st successful take down 4/30/10 had major complications again and ended up in and out of Vanderbilt until 6/4/10. I've had a really rough journey with my surgeries and my body has been through the ringer, so I admit to having a bit of "white coat syndrome," nut I am doing my very best to get better and follow all the poucher rules. However, I've been battling with pouchitis and cuffitis and have also had to be dilitated 5 times since I was released. I've been on entocort, canasas, cortizone suppositories since September. I do great for a bit on new year's eve I hit a wall. Thought it was the hormone patches my GYN put me on to hopefully reduce the amount of cysts I get since the surgeries (pretty common for women who've got a jpouch), but I'm not sure. I am really trying to do everything I can. I am using both holistic and regular medicine, being very diligent about my eating habits, and am journaling so I can try to figure out what my trigger is, but alas I am frustrated and wondering if I wasn't better off with my uc flares. They never lasted this long. I have an awesome GI who wants to start me on a long term antibiotic, but after reading more on Candida I can't help but think that an antibiotic will only lead to longer battle with yeast overgrowth..... My grandmother has been telling me since I was diagnosed with UC in 04 that "Yeast is the problem!" I hate it when she's right and she's always right. Any positive advice would be greatly appreciated.


Emily

colectomy with j-pouch
1st 9/09
2nd 11/20 Take Down
3rd 12/09 (emergency reversal of take down)

Abscess Drain
1st 10/09
2nd 11/09
3rd 12/09
4th 1/10

2nd Take Down 4/30
Stricture 5/5
Stricture 5/9
Stricture 5/15
Abscess Drain 5/30
 
Posts: 41 | Location: Nashville | Registered: January 16, 2010Report This Post
Picture of clz81
Posted Hide Post
Emily, the only thing I can suggest if you are on an antibiotic long term is a strong probiotic to keep the yeast in check. Even though there are mixed reviews on whether or not VSL#3 or other good probiotics help with pouchitis, the probiotic will help keep yeast in balance.


total colectomy/j-pouch creation/temp ileo: 02/05/10
takedown: 04/12/10
son born: 06/22/11
 
Posts: 488 | Location: Illinois | Registered: February 20, 2010Report This Post
Picture of Ms.M
Posted Hide Post
Thanks. I decided to opt out of the antibiotic....I know I'm a non compliant patient. I just felt like it wasn't the solution. I started being more diligent about the vsl#3 and am trying a few homeopathic remedies (1 TBS. Apple Cider Vinegar, a prebiotic, and Jarrow Formula NAG 750). We'll see how that works. I've been doing well for about a week, if it doesn't work, I'll throw in my organic towel and take the damn antibiotics. LOL! Oh well! Thanks for the help!
 
Posts: 41 | Location: Nashville | Registered: January 16, 2010Report This Post
Posted Hide Post
Ms. M, I do recall reading that while prebiotics help the good bacteria grow/flourish, they also feed the bad bacteria. Apparently, they don't discriminate. Just a thought.

I also use organic, raw, unfiltered ACV daily (2T). It's great stuff!
 
Posts: 880 | Location: GA | Registered: April 30, 2007Report This Post
Picture of Ms.M
Posted Hide Post
That's good to know, I was not aware of that. I've really seen a difference since taking the ACV and am going to also try grapefruit seed extract (a natural acting antibiotic) to see if that will work just as well as the long term they want me to take. I'm still on entocort and canasa and cortisone suppositories to help prevent strictures and cuffitis, but I would eventually like to be drug free. Ah what a dream right? LOL!
 
Posts: 41 | Location: Nashville | Registered: January 16, 2010Report This Post
  Powered by Social Strata  
 

The J-Pouch Group    J-Pouch Community    Forums  Hop To Forum Categories  J-Pouch Forums  Hop To Forums  Pouchitis    pouchitis and cuffitis or is it just candida? any thoughts?

copyright the j-pouch group 2006-2007