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Posted
Is anyone getting nerve conduction studies while on chronic flagyl? I'm only on it 2 wks out of every month, but my doctor thought it might be a good idea to monitor for early neuropathy. Has anyone else done this?
 
Posts: 17 | Location: California | Registered: July 12, 2006Edit or Delete MessageReport This Post
SJ
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i've never had that done. but every time i'm on flagyl my doctor is always asking if i have numbness or tingling in my hands and/or legs. which i haven't experienced but apparently it's a side effect of high dosage or long term use.
 
Posts: 98 | Location: Fort Myers, FL | Registered: May 30, 2007Edit or Delete MessageReport This Post
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That's interesting. At one point I was put on it 2 weeks on/2 weeks off but, like SJ, I was told to just look out for the physical symptoms. My doctors seem to be under the impression the peripheral neurosis was unlikely on that frequency but it certainly seems like a good idea for it to be properly monitored.
 
Posts: 682 | Location: England | Registered: February 03, 2006Edit or Delete MessageReport This Post
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I have not heard of people being monitored - very interesting. Suppose would be a good idea if given in high doses long-term. I will say that everyone should be aware of the potential for this side effect and remain alert to the signs. Flagyl should be discontinued immediately if any numbness or tingling is experienced in the extremeties. My husband waited too long and has some (minor) permanent nerve damage in his fingertips. He was just so happy with how much relief the Flagyl was finally giving him.... Frowner This isn't meant to scare people though as most people will not get this condition and all drugs have side effects. It is just something to watch out for.


Muggette
 
Posts: 127 | Location: San Diego | Registered: June 30, 2007Edit or Delete MessageReport This Post
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I have been on and off flagyl for so many years before my pouch removal and I don't recall any of my Dr.'s ever asking me about tingly sensations.Although, for the past year I have had tingly sensations similar to what is described as RLS.After my pouch removal this summer the symtoms got worse so I mentioned them to my new Dr.. He told me that it could be neuropathy due to major surgery, low B12 levels among other things. I had my blood checked and I did have a low B12 level. So my Dr. started me on B12 shots and I have not had any tingly sensations on my left hand and foot. Up until a month ago the only thing that would take the strange feeling away was lortab but that would keep me up at night.Wow, strange that someone started a topic on this.I'm glad though, now I can go back to my Dr. and mention my history with flagyl which I didn't in the begining.Great topic. Thanks for starting it.
 
Posts: 183 | Location: South Texas | Registered: March 27, 2006Edit or Delete MessageReport This Post
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Does anyone know Dr Fazio? He's written some articles on flagyl and neuropathy in Crohn's, so maybe he has thoughts on whether or not monitoring with conduction studies would be worthwhile.

Sorry about your husband, Muggette, that sounds like a lot of stories I've heard -- once the symptoms start it's too late.
 
Posts: 17 | Location: California | Registered: July 12, 2006Edit or Delete MessageReport This Post
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I think it can be reversible if you catch it early enough and stop the flagyl. All the more reason to be extremely vigilant when you're on it.
 
Posts: 682 | Location: England | Registered: February 03, 2006Edit or Delete MessageReport This Post
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That's good to hear, thanks! Hope you're right.
 
Posts: 17 | Location: California | Registered: July 12, 2006Edit or Delete MessageReport This Post
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I have numbness in my face now and I am always extremely weak. I am not currently on metronydizole, but have been in the past. Is this related?
 
Posts: 8 | Location: Tulsa | Registered: July 23, 2008Edit or Delete MessageReport This Post
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