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Im am 2 1/2 weeks post takedown and feeling run down, tired, and am finding it alot tougher than i ever imagined. I just want to write alittle about what im experiencing and see if this is how its expected to be.
Im heading to the loo about 10 times daily and 3-4 times at night,
I am still suffering from stomach cramps which give me urgency, i can hold on for a while maybe about hour or so, but the cramps are normally every 10 mins, i take buscopan to help with this, i put alot down to it being wind but it does seem that as soon as any stool gets into my pouch the cramps start.
If i time it right, and head to the loo just before a cramp i seem to empty and release wind as the cramp happens. i worry that if these stop i wont be able to successfully release wind.
I'm finding that i feel physically tired all the time even making food and general house stuff gives me an ache in my bottom area if stood about for a few minutes.
I think im probably expecting to much to soon, i know. i just find it very frustrating.
I cant tell wether im finding it hard to empty my pouch or that it doesnt have anything substantial in it and the cramps are making me think its full.
I play with the idea i could have pouchitis as have, watery stool, dont feel sick but lousy, am cold alot of the time, and once in a while the watery stool has a redish tint. and on off cramping.
Sorry to ramble and again i know its early days but as im sure you all appreciate after waiting 18 months im just wanting a successfull outcome.
Any advice appreicated... or of simular overcomes experienced
I would certainly talk to your doctor. It may be pouchitis, or it could be something else. I didn't experience much cramping, although I had the noisiest stomach around. Are you still on prednisone? I found that made me feel like crap.
It can take a couple to several months for your body to find its "new normal."
No im not on any steriods just take buscopan for cramps and codedine before bed to slow things up.
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