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Posted
After years (7) of every antibiotic prescribed for pouchitis, I am finally in remission that feels like it may last. I spent years either feeling sick from pouchitis or sick from the antibiotics. I went back to my GI dr. about 3 years ago. He did not have much pouch experience but when he found out that the antibiotics were not the answer we started trying other things. I now do Rowasa enema at night and that is it. I tried Canasa which I believe is basically the same thing, but it didn't keep me in remission long. I guess the enema goes up further. I took Rowasa during my UC days (I also took something like Pentasa, not sure) and it kept me in remission for at least 10 years, so I guess it makes sense that it works for me now. It just took a long time to figure that out. I feel total relief that I've found something without bad long term side effects that works. Even if I have a flare once in a while and have to take some antibiotics to get it back under control, I'm ok with that. The future looks so much better now.
 
Posts: 345 | Location: NC | Registered: February 26, 2009Report This Post
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Chal - this is wonderful news! Congratulations!
 
Posts: 490 | Location: Ohio | Registered: March 10, 2004Report This Post
Picture of AllyKat
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I've been in a year remission with canassa.


"True stlye is about living passionately"
UC 1996

-5 asa, predisone, 6 mp
-Dec 26, 2000, Emergency j-pouch surgery
-Multiple complications, J-pouch redo- July 3, 2001.
-Take down-Jan 3, 2002
-Chronic pouchitis: cipro, pentassa, xifican, cortifoam, canassa, leviguin, lexapro
-Gall bladder out-Oct 1997
-April 2010 bad pouchitis flare-remicade (only 2 doses)
-Aug 2010-adhesion surgery
-Doing great! only canassa!for pouchitis and lot's of suppliments!
Oct 2011-so much for adhesion surgery!
 
Posts: 2157 | Location: Rockland County, New York | Registered: December 22, 2000Report This Post
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