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After years (7) of every antibiotic prescribed for pouchitis, I am finally in remission that feels like it may last. I spent years either feeling sick from pouchitis or sick from the antibiotics. I went back to my GI dr. about 3 years ago. He did not have much pouch experience but when he found out that the antibiotics were not the answer we started trying other things. I now do Rowasa enema at night and that is it. I tried Canasa which I believe is basically the same thing, but it didn't keep me in remission long. I guess the enema goes up further. I took Rowasa during my UC days (I also took something like Pentasa, not sure) and it kept me in remission for at least 10 years, so I guess it makes sense that it works for me now. It just took a long time to figure that out. I feel total relief that I've found something without bad long term side effects that works. Even if I have a flare once in a while and have to take some antibiotics to get it back under control, I'm ok with that. The future looks so much better now. | |||
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Chal - this is wonderful news! Congratulations! | ||||
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I've been in a year remission with canassa. "True stlye is about living passionately" UC 1996 -5 asa, predisone, 6 mp -Dec 26, 2000, Emergency j-pouch surgery -Multiple complications, J-pouch redo- July 3, 2001. -Take down-Jan 3, 2002 -Chronic pouchitis: cipro, pentassa, xifican, cortifoam, canassa, leviguin, lexapro -Gall bladder out-Oct 1997 -April 2010 bad pouchitis flare-remicade (only 2 doses) -Aug 2010-adhesion surgery -Doing great! only canassa!for pouchitis and lot's of suppliments! Oct 2011-so much for adhesion surgery! | ||||
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