hy everyone..i have had my surgery done one and a half years ago..always on and off drugs..mostly on..antibiotics and steroid suppositiries..

anyway ,had a sigmoidoscopy and i have acute and chronic pouchitis and cuffitis!!!is there any hope here..this has been a long time going ..first real sigmiodosocpy with biopsies done..i am pretty spent emotionally and physically..never had bag as i had one step proceedure..i fear it for many reasons..going to a new surgeon today just to begin understanding about it..i never was told about the possibilities i am having with my jpouch..actually my surgeon said only about 6 percent have real problems..i am not asking to be perfect ...many of you have had the bag surgery and seem happy..rebecca

In case you haven't already, I'd give VSL#3 a go before you give up.

Hi,

I understand how you are feeling i have severe pouchitis. I think i have finally found a method that works. IF immune suppresents don't work why not try tube feeds to get it down for a bit and then do rhemicade if still things are not improving. I'm doing Rhemicade now and I noticed that there were huge imporvements. Why not see if you can give it a shot. Best of luck you still have lots of options don't give up yet.

thanks for input i had tried vsl but i will again i just could not handle all those probiotics in just one pill..it made me go so much more but on another probiotic i just had to build up to that..so i guess i can try that again..

also the idea avoiding food going down intestine is a unique thought..only thing i heard was a temporary illeo but am seeing surgeon tomorrow see what he says about that..you also mentioned remicade..i used that for the colitus last resort..did not have any luck with that..but i am not ready to throw towel in today (maybe last friday however!!!)thank you forwriting..rebe