Sorry, I have not posted lately. THings have been decent. But for the last week, I have had night time accidents. And during the day. Sometimes things are really watery. I had some achey pain last week on my left side, but that has gone away. Not every visit to the b'room is watery, but 50/50. I have tried to eat BRAT diet. But, it gets watery. Freaquency is up. I don't know, what do the experts at J pouch think.

Pouchitis is often diagnosed based on symptoms alone. A call to your doc can get you on antibiotics quickly to see if they help.

Jan

Man! I could have written this post. Hang in there SLC. I guess the best we can do is keep our doctors' advised and be supportave of each other.
Never realized how many of us there are out there untill I stumbled upon this site. Regards, Lou

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I've had pouchitis several times over the past decade. A surgeon I saw raised the possibility that it could have actually been crohn's disease rather then pouchitis.
I see you have UC. I had UC, now I have crohn's. There's a blood test they can do to test you for crohns.
Other then that, flagyl usually helps.

Wow! I am amazed ( I know I shouldn't be ) by the many people later diagnosed with Crohns. The blood test that they have now, is it fairly new? I had my pouch done one year ago. So, when I go in next week, Do you think it is out of line to ask for the blood test? Is the test accurate? I do think something is going on in that ol' pouch of mine. Lots of gas, and some pulling or tightness just below the rib cage. I've had surgery once for adhesions. Those little creaps better not be back I am always so pleased, with the amount of support this site offers. My husband and good friends can listen all they want, but only this site and people know...THanks, I'll keep you all posted. Sue

SLC, you would be absolutely correct to ask your doctor about the blood test ... and any other issues for that matter. There are no dumb questions (as I am sure you know) ... besides it's your body. You have a right to as much information as you can get. You are also correct about this site. Regards, Lou

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SLC,

One of the main precursers of my pouchitis along with a change in bowel is a small fever / achy joints.

Watch those antibiotics, read on in the discussion page. They can be real nasty. I feel just a bad or worse taking Flagyl for thoese two weeks. But as yet the only thing that we know to take care of pouchitis. It you had your surgery a year ago and this is your first experience with pouchitis, that would seem to be pretty lucky in your court. Mine ensued about every 3rd month until I started VSL#3 probiotics. Now I get it only about once a year. Others as you will read here are on antibiotics all the time...

Hope the appointment goes well... you don't want Crohns. And by the way the Brat diet has never accomplished much for me one way or the other since my surgery. Does it work for you?

Best to you SLC,

RyanM

SLC - I, like many others here, feel your pain. I have had pouchitis almost since the TD surgery. I guess to some degree I am lucky because I have never had any kind of reaction to any of the antibiotics. Flagyl did absolutely nothing for me. Cipro worke at high doses while I was on it. The best maintainence med I have had so far was Xifaxin, but those results faded. I do well on BRAT too but come on, how long can you survive on that? I have never had a long enough good period off of antibiotics to try probiotics but if you can squeeze it in after antibiotic treatment it seems to work for a lot of people. Good Luck.