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Hi guys
Was in hospital with pouchitus last week still on Flagyl been 13 days now. Although the campy colicky pain has subsided I still have pain in the right side of pouch this area was tender when I was examined. Also my pouch feels like someone has been using it as a punching / kicking bag. It's very tender and sore. After I eat something - even something small like a boiled egg, leaves my completely bloated and full for the rest of the day. CT scan revealed severe inflammation. What to do from here? |
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I have no advice, just sympathy. I am so sorry. We go through a lot and then to have this must be so hard. If you have not said other things in addition to flagyl you have tried, you may want to do that. I don't come on a lot these days, so do not know if you have been posting.
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Do the Dr's have you on something for the inflammation too? Like prednisone, canasa, or something like that? It may be worth a shot to help try to beat down the inflammation a bit. Good Luck, Scott Mc
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Yeah I on hydrocortisone
Double my usual dose And the usual pain meds |
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throw 2 rowasa enimas in the mix daily,..1 in morning 1 at night,..use 1 Cort enima inbetween the 2. Be sure to take 1 probiotic every day,..after you come off the Flagyl,.stay on the roawasa for 3 weeks.
RECONSTRUCTS J-POUCHES Dr. Feza Remzi // Cleveland Clinic // Surgery |
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Thanks Drew
My biggest problem is I am unable to use enemas any more. I have some cortisol enemas which I used to find brilliant but can no longer insert them. I have another post going on my shrinking anus. Ahh my surgeon told me to phone him if I not improved, so it looks like I will be going in for a gastroscopy. Ah well I am way over due for a scope so it's probably for the best. |
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just curious why u cant insert enemas anymore ????
RECONSTRUCTS J-POUCHES Dr. Feza Remzi // Cleveland Clinic // Surgery |
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I think she mentioned she has an anal stricture, so it must be too small to insert the enema tip. I would think that an anal stricture that tight is just adding to her problems and a dilation is in order.
Jan Take a deep breath and relax; this too will pass. |
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