Hi everyone!
I'm from Germany so please excuse my poor english !

I had UC since 1997. In April 2010 they removed my entire colon and built a J-Pouch in the same surgery.
After 3 weeks I had a lot of mucus and watery discharge. My doctor means thats a Pouchitis. So he treat me with Cipro. No success :-( Now I get Entocort Rectal (Budesonide).
In a pouchoscopy last week I spend some tiny pieces of my J-Pouch :-) The histologist wrote a letter with the following diagnostic:

Pouchitis of the type Ulerative Colitis.

I have no blood, no pain only a lot of watery mucus. The magnetic resonance tomography was negative.

Did anyone heard of a Pouchitis before take down?

I go mad

Hi hansman! I am from Germany too! And yes, I did have a pouchitis before takedown. But I had alot of blood after some days. Best regards Sandra

Hi Sandra, nice to meet you here ;-)
I'm sorry that you had already a pochitis before take down surgery! Thats not the deal... ;-)
So, can you tell me a little bit more about your situation?

How did they diagnostic your pouchitis?
I had an endoscopy with extraction of little pieces mucus and a MRT.

How did they treat you?
I had 10 days cipro with no success. Now I try Entocort (rectal).

Did you felt a little bit sickly?
Thats what I feel.

How long did you wait between J-Pouch building and take down?

And how are you today? I hope fine and your J-Pouch is working well.

Many greets and thx for your answer - Carsten

Hi
I too had pouchitis before takedown, mine was discovered when I had an examination under anaesthetic, I was given a course of flagyl, but unfortunately they didnt work. A few months later things got so bad I was hospitalised for a week I had a flexi sigmoid which just showed inflammation and bleeding patches. I was given flagyl, cipro and salofalk enemas, these things greatly improved things although didnt totally take away the symptoms, my surgeon and I decided that we would see how things went after takedown and I had my takedown 3 weeks later. I am now 3 weeks post takedown and fear I am staring with pouchitis again, as I have most of the symptoms, and constant pain. Because my original diagnosis was Crohns and it was changed to UC after my colon was removed and because I have had many complications my surgeon is worried that I do actually have crohns and has said if it does turn out to be crohns then I will have to have my pouch removed.
I hope things have improved for you? Have you had your takedown?

Shelly