hi everyone dont knw if use can help me but i have a 6year old son who had uc and had to get his bowel removed and get an ilestomy when he was 2years old last year he went in for start of the j-pouch and he had it all reconnected on feb this year the problem is am having a terrible time with my neighbour were i have had to get police and now a solicitor involved she has 3boys her youngest being the same age and my son and the one older than him is 12years old and my son is scared of him and has been laughing at him cause he had to wear pull-ups wen he first had his operation so we had an arguement to which i called police and had a solicitor involved but the big problem is she has moved into her mothers but not told her council office so she just appears and wen she does this causes great destress to my son and is going to the toilet more and more and now having accidents during the nite and has started having some blood in his stools sorry for the long message but i just woundered if this can cause pouchitis as ive spoke to the hospital and ive to keep an eye on it and if it gets worse to take him up to the A&E department this is just so stressful as my son is the youngest the hosptial has dealt with so they dont really knw wat to do with him any help will be great thanks

I am sorry your poor little guy is going thru this.

Try re-posting this in the general discussion forum...more people will see it and I know there are several parents on here whose young children have a j pouch. Hopefully they can offer some advice to you. Best wishes.

If he's experiencing bleeding it could be cuffitis. That is treated differently than pouchitis. But to figure out what it is he'll probably have to have a doctor examine him.

I hope you get this resolved.

kathy

I am so sorry to hear about what your son and you are going through. I'm sorry I don't have any answers, and as Kathy said post in "general" or "help now" sections. Praying for your son.

I can't tell you if it's pouchitis or not but what I can say from one mother to another - The things our child has to go through and endure are tough to say the least and to have the added social issues don't help the psyche of our "healing" child. My own son had to deal with a small amount of stupidity and nastiness from a few other kids. All I could say to him is that those other kids have no idea of what he's gone through and even if they did they still wouldn't understand how courageous and strong of a person he is. What they think doesn't matter.
It's not okay for your little boy to have to endure ignorance and bullying for something he has no control over and never asked for!
I may have to take a trip to Scotland and kick some bully's ass - just kidding...but it's tempting

As for whether this stress can affect your son's health - I think it would definitely be a factor - not the cause but definitely a factor. Whenever my son would get nervous or upset it would always show it self in increased pouch output. We have spent alot of time learning to let things go and not let the stupid or insignificant things get to us.

We are about 2 and a half years post takedown and things are going great but I feel like it did take time for everything to work well and especially for kids incontinence can be a bit of an issue (we still use a pad when he sleeps)
I'm hoping he grows out of it but I keep reminding myself that he has had his whole "plumbing" redesigned.

I wish you and you son all the luck. I hope things get resolved in all areas!