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The J-Pouch Group    J-Pouch Community    Forums  Hop To Forum Categories  Imported Forums  Hop To Forums  Pouchitis    Has anyone had cronic fatigue whilst having UC / j-pouch???
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Posted
Hi all,

I have had cronic fatigue since the onse of UC five years ago. Its been 1.5yrs now since i have had my large intestine out and nearly one year since the activiation of my pouch and i still have cronic fatigue.

I have had pouchitis now for about 8 months so few months after activation.

When i mean fatigue, i mean severe exhaustion. I find it hard to do the most simple task.

I am very exhausted all the time, and all bloods show that i am fine.

Anyone else in the same boat??

Has doing the operation helped people loose cronic fatigue?????

Any comments appreciated guys!!

Regards
Jerry
 
Posts: 36 | Location: Australia | Registered: April 14, 2008Edit or Delete MessageReport This Post
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I have fatigue issues as well with 'normal' bloodwork. No one seems to take my complaints seriously though...
 
Posts: 311 | Location: Queens, New York | Registered: July 31, 2006Edit or Delete MessageReport This Post
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Hi 'Ressurect'

Do you think your fatigue has improved since you had the pouch operation??

How long have you been fatigued for??

Pleased to hear.

Regards
Jerry
 
Posts: 36 | Location: Australia | Registered: April 14, 2008Edit or Delete MessageReport This Post
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Hi Jerry,
I was diagnosed a little over 5 years ago with chronic UC. I had my j-pouch surgeries in Feb. and April 2006. I still have fatigue. My blood tests for the most part are okay - but I see a nutritionist who has helped with vitamins and supplements to lessen the fatigue. I was told by both my colorectal surgeon and my gastroenterologist that since UC is an auto immune disease, fatigue (sometimes chronic) is common. If I need to nap, I'm told to nap. There are some days I'm fine; but for the most part if your body needs sleep, I was told to nap or go to sleep early. And when I say "nap", I mean like a 3 hour nap - but when I wake up I'm fine and can go to bed at a reasonable time still ready to sleep for the night. Talk to your doctors and see if any medicine you are taking is making you feel fatigued. That may be a good place to start.
 
Posts: 48 | Location: Encinitas, CA | Registered: August 12, 2006Edit or Delete MessageReport This Post
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Laurie,

Thanks. I wonder if we went back to a colostomy and thus having no active disease, would fatigue go away?
 
Posts: 36 | Location: Australia | Registered: April 14, 2008Edit or Delete MessageReport This Post
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