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Posted
Does anyone know if there is a web page that is active for support with those with FAP? Thanks.
 
Posts: 118 | Location: Dallas | Registered: August 12, 2010Report This Post
Picture of SJ916
Posted Hide Post
Try Facebook groups:
F.A.P (Familial Adenomatous Polyposis)
Familial adenomatous polyposis (FAP)

And there is a Yahoo! Group:
http://health.groups.yahoo.com...up/gardnerssyndrome/

Those are the most active groups with people who have FAP, in my opinion.

Hope this helps.


FAP; APC R302X
Colectomy and Ileostomy 2002 (age 17)
Reversal to J-pouch 2005
 
Posts: 30 | Location: CT & FL, USA | Registered: January 04, 2006Report This Post
Picture of vanessavy
AIM: Online Status For pr0x2
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I just got told I most likely have FAP, had 100 polyps removed yesterday and was told I need to remove my colon.

Looking for any boards as well. I see you are in Dallas too commandz, have you had surgery yet?


Diagnosed with FAP 9/11. >100 polyps/stage 1 cancer. Cholecystectomy, Proctocolectomy and BCIR surgery December 9, 2011
My blog: http://vanessaic.wordpress.com/
BCIR: http://www.bcir.com
 
Posts: 307 | Location: Dallas | Registered: September 24, 2011Report This Post
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Whatever you do ... if you have to have the surgery (which I hope that you do not) ... request laparoscopic surgery.
 
Posts: 26 | Location: SC | Registered: August 17, 2011Report This Post
Picture of vanessavy
AIM: Online Status For pr0x2
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I have to have surgery and I am either going to Mayo or Cornell, looking at Cornell closer since they specialize in lap surgery for this.


Diagnosed with FAP 9/11. >100 polyps/stage 1 cancer. Cholecystectomy, Proctocolectomy and BCIR surgery December 9, 2011
My blog: http://vanessaic.wordpress.com/
BCIR: http://www.bcir.com
 
Posts: 307 | Location: Dallas | Registered: September 24, 2011Report This Post
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