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Does anyone know if there is a web page that is active for support with those with FAP? Thanks. | |||
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Try Facebook groups: F.A.P (Familial Adenomatous Polyposis) Familial adenomatous polyposis (FAP) And there is a Yahoo! Group: http://health.groups.yahoo.com...up/gardnerssyndrome/ Those are the most active groups with people who have FAP, in my opinion. Hope this helps. FAP; APC R302X Colectomy and Ileostomy 2002 (age 17) Reversal to J-pouch 2005 | ||||
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I just got told I most likely have FAP, had 100 polyps removed yesterday and was told I need to remove my colon. Looking for any boards as well. I see you are in Dallas too commandz, have you had surgery yet? Diagnosed with FAP 9/11. >100 polyps/stage 1 cancer. Cholecystectomy, Proctocolectomy and BCIR surgery December 9, 2011 My blog: http://vanessaic.wordpress.com/ BCIR: http://www.bcir.com | |||
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Whatever you do ... if you have to have the surgery (which I hope that you do not) ... request laparoscopic surgery. | ||||
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I have to have surgery and I am either going to Mayo or Cornell, looking at Cornell closer since they specialize in lap surgery for this. Diagnosed with FAP 9/11. >100 polyps/stage 1 cancer. Cholecystectomy, Proctocolectomy and BCIR surgery December 9, 2011 My blog: http://vanessaic.wordpress.com/ BCIR: http://www.bcir.com | |||
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