Hi everyone,

I had my pouchoscopy today done. The findings were as followed, some ulcerations, and mild immflamation. I am glad it wasn't serious. As for the distended belly, cramping and nausia, my doctor thinks it is related to my gastroperisis. Does anyone else have this? She also recommended that I try a not gluton diet to see of the belly goes down. I am not sure if I am going to try it yet it will be my choice.

How about some testing for Celiac disease before going on the gluen free diet? You can't get an accurate result unless you are eating gluten. But, yes, your symptoms ARE consistent with Celiac. A reason to diagnose or rule out this condition is that if you do have it and continue to eat gluten, the small intestine becomes irreversibly damaged.
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001280/

Jan

Jan,

Thanks for your advice. My doctor thinks she has already tested me for it but I will be going back on Wednesday for the results for now you are right we do not think this is celiac either my doctor would have to perform blood work for it. In the meantime I am staying on a normal diet.

Your symptoms of distended belly, cramping and nausea sound like they could very well be from gastroparesis. I agree with your doctor about trying a gluten free diet, or at the very least keep a meticulous food diary for a few weeks and see if you can spot any connnections. When I was diagnosed a couple years ago I tried going gluten and lactose free and couldn't tell any difference, but in the past few weeks I have noticed that any time I eat any wheat I am particularly miserable. So keep in mind that GP is a day by day disease, and you will have to find what works for YOU!

How long have you been dealing with the gastroparesis? Some days I wonder if it was easier to deal with UC than this monster, although I am so thankful that I didn't have them at the same time!

Lorsal,

I have gastroperisis. I did right that in my post. Do you have it as well? You are right about that I believe it is my gastroperisis. I have a gastric pacemaker and I do not think it was looked at in a long time. I have an appointment to see my motility doc but I think it won't be until March. They put me on stand by for an earlier appointment. My father also told me that without a gullbladder I can't have fried food because it can mess up my digestive system as well. I will have to see what my gi says on Wednesday. Wish me luck.

I also have gastroparesis, although I was told I am not a candidate for the gastric neurostimulator because I seem to have some small bowel dysmotility as well. I also had my gallbladder removed in an attempt to control my nausea, vomiting and pain before I was diagnosed with the gastroparesis.

And as far as eating fats- that is a very individual thing. I can eat fried foods with no problems, but have a hard time with things like frosting, and I can't eat chocolate at all. I also keep my portions of anything I eat very small, as I only eat for pleasure and it is not enjoyable if I am throwing it up. (I get my nutrition from TPN.)

Let us know what your GI says on Wednesday!

Hi Lorsal,

Wow you also have gastroperisis it is nice to here that I am not alone. I was able to get the stimulator but only after doing a gastric emptying test to see if I qualify. I have had the pacemaker for almost three years. I had fried food and I think I did ok with it as well. With my gullbladder being gone I still need to be careful on what I eat fried wise.