Has anyone been on NG Feeds for pouchitis? I've been on them since end of August this year. They've really changed my life. Has anyone gone off of the tube feeds and fouund that they feel better? Is anyone taking 6MP and Rhemicade? Did your picuh ever make you feel like throwing up or a gag reflex? Thanks for listening you guys are all so helpful.

Mollie

Pouch girl for 7 years!

I don't know if I made this clear because no one is replying or anything. NG Feeds are basically a feeding tube. It feeds you continously throughout the day they do them in Ulcerative Colitis and Crohns. If you know anyone on them for pouchitis or anything or any of the drugs I have mentioned would be really helpful. I'm beggining to feel like the only one since I've been hospitalized four time in the past year. Last visit was three weeks!

Sorry correction. I've never read anybody being on them on this discussion board and i've been part of this for a little bit. Thanks so much.

I am sorry I do not have much to offer but I do have a few questions. I have never had pouchitis (it has been 4 1/2 years since TD). However I do not recall hearing N/G feedings as a solution. For some reason I can't seem to make sense of that? Are you also on some antibiotics or is the N/G fedings your only treatment? Did the MD mention anything like SMA (superior messenteric artery syndrome)? Maybe a little more background information and people that are more knowledgable than me will be along.
Best of luck.

Hi,
Sorry I was too vague. I'm taking Rhemicade, FLagyl, and 6Mp for meds. They put me on the feeds because it seems like everytime i used to eat i would have bathroom problems and then i got to the point where i couldn't eat for two months and i lost so much weight because everytime i tried i would feel like i would throw up or be in the bathroom for eternity. It's also supposed to rest my bowel and have me attend school for a while and feel what it's like to be well nourished. I forgot how little energy i had for six years. What's SMA exatcly i'm only a teen!

That makes a little more sense to me. The medication you are on is probably for treating your pouchitis. The medication can be causing your stomach problems and lack of appetite. SMA syndrome is a mechanical bowel obstruction (usually intermittent). It is not very common. I think it is more common in younger people. It is usually associated with a large weight loss and prolonged bed rest. The treatment can be tube feedings or IV feedings. The idea is to put weight back on and things seem to fall into place. I'll be thinking about you. Keep us posted with your progress. I hope ou start to feel better soon.

Hi,

With the tube feeding I feel really good . I just found out I have them through Christmas that's good becuase i don't want to make changes through the holidays. I do some yoga and i'm thinking of joining speical olympics in dartmouth nova scotia? Does anybody know anything about that? I thought it would be a good idea because sometimes when i go to yoga my teacher notices it's a bit harder for me. Right now i only go like 5-6 times a day so that's really good for me.