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Posted
I have been struggling with poutchitis off and on for almost 2 years now and have struggled to come off the cipro and flagyl without the poutchitis coming back. My doctor suggested Canasa to deal with the inflamation. Has anyone used it? Thanks.

Eric
 
Posts: 11 | Location: New Jersey | Registered: February 08, 2008Report This Post
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I tried it,..it did nothing for me,..i started to flare up right away,..I had to use Rowasa enimas instead,..they worked. Why is it such a struggle to put your pouchitis in remission? are u taking probiotics? I keep remission for a long time with xifaxan (3 a day) probiotics (and 2 shots of Cortifoam daily) I get pouchitis 1-2 times a year and put it in remission in 1 day


RECONSTRUCTS J-POUCHES
Dr. Feza Remzi  //  Cleveland Clinic  // Surgery
 
Posts: 138 | Location: Orlando FL USA | Registered: February 08, 2008Report This Post
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I am taking cultural daily but I have no idea if that helps. On the anitbiotics I am fine (cipro/flagyl) but after a few days of coming off it goes down hill. I took Rowasa enimas when I had the colitus but I didn't know you could use it for poutchitis. Thanks.
 
Posts: 11 | Location: New Jersey | Registered: February 08, 2008Report This Post
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Yes the probiotics are a must.
Taking flagyl and cipro doesnt always hit remission,..yes u can take Rowasa enemas ,2 a day with a Jpouch,..its needed for 3 weeks after a course of antibiotics (in some cases) then a week of taking 1 rowasa enema and then stop them,.if the pouchitis continues,..it may be chronic and need on going meds.

This message has been edited. Last edited by: Drew,


RECONSTRUCTS J-POUCHES
Dr. Feza Remzi  //  Cleveland Clinic  // Surgery
 
Posts: 138 | Location: Orlando FL USA | Registered: February 08, 2008Report This Post
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Drew,
Do you take the cortifoam every day even when you achieve remission? I was told to only take it for up to a month and thank goodness I usually I go into remission anywhere from a few days to up to 3 weeks so I never had to take it for that long.


"True stlye is about living passionately"
UC 1996

-5 asa, predisone, 6 mp
-Dec 26, 2000, Emergency j-pouch surgery
-Multiple complications, J-pouch redo- July 3, 2001.
-Take down-Jan 3, 2002
-Chronic pouchitis: cipro, pentassa, xifican, cortifoam, canassa, leviguin, lexapro
-Gall bladder out-Oct 1997
-April 2010 bad pouchitis flare-remicade (only 2 doses)
-Aug 2010-adhesion surgery
-Doing great! only canassa!for pouchitis and lot's of suppliments!
Oct 2011-so much for adhesion surgery!
 
Posts: 2127 | Location: Rockland County, New York | Registered: December 22, 2000Report This Post
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I take cortifoam 2 times a day as a maintenance ,..ill flare up without it.


RECONSTRUCTS J-POUCHES
Dr. Feza Remzi  //  Cleveland Clinic  // Surgery
 
Posts: 138 | Location: Orlando FL USA | Registered: February 08, 2008Report This Post
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Canasa is generally prescribed for cuffitis when you have a pouch, but I suppose it could work for pouchitis too, since it is also used for proctitis (colitis confined to the rectum. Rowasa enemas might do a better job of getting higher though.

Jan Smiler


Take a deep breath and relax; this too will pass.
 
Posts: 18654 | Location: Fremont, CA, USA | Registered: April 07, 2000Report This Post
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It helped me at this stage of my pouchitis but in the beginning I found any suppository difficult to hold. Can't hurt to try...pretty low risk compared to antibiotics!


Faith, Hope, and Love,

Katrina
Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, osteopenia, Prolapsed pouch
mandksales.net
feel free to email me: carmelann@charter.net
Facebook: http://www.facebook.com/kat671
 
Posts: 88 | Location: Wisconsin | Registered: August 20, 2005Report This Post
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